Tag Archives: hospice

2016: The Year of Enough

Happy New Year! Welcome, one and all, to 2017!!

Party animals — NYE 2017. Me and Curls watched a movie and ate BBQ chips… I’m old.

I laid in bed early yesterday morning, scrolling through Facebook’s daily reminder of what I’d done that day in history… and since I started Under the Tapestry, I’ve pretty consistently spent New Year’s Eve reflecting on a big theme, a lesson learned, a summary of the year about to end. I wanted to do that again, but my head was pounding and I hadn’t slept well and I needed to be up at and ’em for reasons I’ll explain momentarily, so bliggity blogging remained on hold. Even thinking remained on hold, to be honest.

Instead, I closed Facebook down, took a deep breath, and dialed my nextdoor neighbor. To my profound relief, he picked up the phone.

I’d left Lyle in his bed the night before, honestly unsure of whether he’d still be alive in the morning. He was so weak and confused, short of breath, complaining of a back ache. But all he wanted was sleep. He hadn’t eaten all day, just a bit of water, the glass of OJ his niece and I begged him to drink. He us to leave him so he could sleep. I called the hospice nurse as soon as I got home and though somewhat reassured, I still cried a bit, thinking of what that day somewhere in the near future is going to look like… when one of us finds him in the morning, having passed on. I know that’s the point of hospice, but I also thought the point of hospice was supposed to be comfort… a good death. This doesn’t seem good. It seems hard and scary and uncomfortable. What I’m learning though is that what hospice is truly about is autonomy… about saying enough is enough and living what’s left of your life on your own terms. We don’t always choose the best terms for ourselves, but that’s the thing about choices. No one else gets to make them for us.

Just a week ago, Lyle was looking alright on Christmas day — we brought him an old fashioned and had a nice visit.

As I sat in the maroon recliner at Lyle’s house that morning after the phone call (and a quick run to Dunkin Donuts for an uneaten breakfast sandwich and undrunk cup of coffee), Lyle dozing, in and out, in the blue recliner next to me, I began pecking this post out on my phone. Vague ideas and misspelled, fat-fingered words, just a start. Because I’d realized, despite the headache and the fear, that the idea of what exactly constitutes enough is what I learned in 2016.

Most recently, I’ve worried desperately about Lyle. We’ve lived nextdoor to him since moving in o our house in the summer of 2012, and in that time, we watched Lyle care for his rapidly declining wife, Marlene, Mar, through an awful battle with Alzheimer’s disease that ultimately ended with a broken hip, brief hospitalization, and rapid death last December. In the year since, Lyle has declined even quicker. I’ve seen what a broken heart and battered psyche can do to a man’s body and all the while, I’ve worried about whether what I’m doing to help is enough. As I watch Lyle suffer loss of appetite, mobility, strength, weight, will to live… I’ve constantly wondered about whether I could have done more. I feel like I tried so hard, but had I really tried hard enough, wouldn’t this be a better process? It was yesterday, on New Year’s Eve, as I emptied out Lyle’s catheter bag that I knew suddenly, in no uncertain terms, that I had indeed done enough. Because enough, in this case, is my best… in the face of what Lyle has chosen to be enough for his life. Lyle and I, both imperfect, are both doing our best. For ourselves. For one another.

When I realized that, all the other moments of “enough” throughout this past year flooded into my mind.

After our miscarriage late last year, I needed to demonstrate that I could make my body do something I really, really wanted it to do — for that, only a marathon was enough. And it was exactly what I needed, extreme catharsis.

I desperately wanted (and still want, really) a family, but every aspect of our infertility battle has taken a lot out of us, mentally, physically, emotionally, financially, temporally We were fortunate to find a doctor that understood me, both medically and psychologically – she knew I needed to “leave it all out on the field” or I’d have questions, always wonder, and she advised me accordingly (Christine Broadwell at Generations in Madison, should anyone reading ever need such services). After the second round of IVF with donor eggs, third round of IVF this year, all with no success, we’d finally had enough. Somehow, despite the sadness, profound grief, feelings of failure… there’s also incredible relief in saying “enough!” and believing it.

Likewise, I desperately wanted to make things better for myself and those around me in my place of work and I felt like I fought the good fight for a long time. Actually, I know I did. I tried really hard. But I couldn’t keep doing it. It had become so hard to get out of bed in the morning. So I put down my sword and took a new job in a new department. Two weeks in and I am already profoundly certain that I’ve done the right thing… and I feel good knowing that I did everything I could do to try to stay before saying enough and making the choice to move on.

 

 

Enough, upon reflection, is a beautiful thing. It’s a step back from must-be-perfect to as-good-as-it-gets and I’ve-tried-my-best. To say “enough” and really mean it is a huge relief. Yes, even to give up on a baby, to say enough to infertility treatment, though sad, honestly feels like a relief. We’ve had enough.

Getting to “enough” reflects my autonomy to make a decision about what’s right for me, and to have that kind of autonomy and the wherewithal to use it is a blessing. So, hasta la vista, 2016 — I’m glad to have learned from you, but have really had enough. I suspect I’m not the only one.

Happy 2017, friends! May this year bring you the courage to say “enough” and really mean it!