Tag Archives: depression

Fertility Friday: Story beads… or the power of catha-art-this.

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As anyone whose ever gone to grade school knows, there are a lot of times in our lives that we are expected to do stupid things that someone else thinks will be good for us.

When I was younger, I was always right. The stupid thing was exactly as stupid as I thought it would be and it never did me any good.

What can I say, I was born knowing everything.

Until I was approximately 17 at which point I distinctly remember the first ever stupid thing that was actually good for me.

My first ever therapist made me do lots of stupid things. I was on the struggle bus and I just really didn’t understand how doing coloring pages in her office and making collages of magazine pictures in my dorm room was going to do anything to help with the fact that I was sad, down, miserable ALL. OF. THE. TIME.

But I (my parents, and their insurance) was paying for this lady, so I jumped through her hoops. I did her stupid things.

Every so often, I’d sit in what’s-her-name’s office with a coloring page and a big box of colored pencils, I’d scritch and scratch on the paper and answer her questions. Talk about my stuffs. Without fear… very open… about things I vowed not to talk about…

Damnit — the coloring! She tricked me into spilling my guts!

And her mind tricks only got more tricksy with the collage business. We talked about a little photo of a martini glass filled with milk for such a ridiculously long time. Why did it attract me? Was it the juxtaposition that I related to? And so on. It had seemed so silly until she really made me think about it. Not to mention the sort of mindful mindlessness of clipping the pictures on the floor of my room night after night.

Art projects, journaling, nerdy ice breakers, flipping through pictures, doing yoga, forced show and tell, filling my body up with sunshine, repeating tiny positive phrases…

Over the years, the stupid things have actually been so effective, that I have even stopped thinking of them as stupid. Actively pursuing things I once-upon-a-time would have immediately, and vehemently, poo-pooed.

 

And that’s the me of today. I like to try things — stupid things. Weird things. Out of the box things. Recently, through some of the hardest struggles and biggest hurts, I’ve found various artistic endeavors to be particularly helpful, healing, grounding, calming, enjoyable. I’ve pressed flowers and experimented with water colors. Hosted a painting party and DIY decorated my home.

This past weekend, I tried something new yet again. My friend Marie (my spiritual guuuu-ru) hosted a retreat at St. Anthony Spirituality Center in Marathon, about an hour north of me, focused on the use of beads in prayer — Pray One, Bead Two. Sounded neat… and the weekend did not disappoint.

Marie taught us the millennia-long history of the use of beads in various spiritual practices across geography and time. She told us stories about her innate attraction to the repetitive, tactile nature of the use of beads in her own life and the way that translated into a robust spiritual practice in her life today. Marie shared her stories, her knowledge, and her beads with us — oodles of beads — and we built things that meant something to us from the things that she shared.

My beaded creations from the retreat this weekend.

I made a mental health focused prayer bracelet – a soft, sea green, with beads in sets of three, and a St. Dymphna medal; the patron saint of mental illness.

I made an earth amulet – one big clay circle representing God, the Earth, the universe, the totality, and a single wooden bead above it, representing myself and my place in the whole.

I made a beaded prayer shawl focused on healing – a heavy, long string of lovely beads with colors representing the bodily chakras from head-to-toe, toe-to-head, and back again.

And finally — the story beads.

The second Marie mentioned story beads, the idea of creating a story or party of a story from your life in a strand of beads, I was enamored with the idea. It was the last thing we did, but the first place my mind went as I started sifting through the different colors, shapes, and sizes of beads. As I made every other piece, I set aside the beads I knew I’d use to represent different pieces of the story I wanted to tell. And in the end, putting together my journey through expectation, infertility, miscarriage, depression, and to the place I am now was incredibly cathartic.

Want to see?

It started when we got married. We’d been together FOR-EV-ER. We were both crazy cute kids. We knew we wanted to make some more. We wished for a family all our own.

A year went by. It can take time. We knew that. We saw the doctor, did the tests – probes in unpleasant places, awkward samples in tiny containers. Nothing was wrong. So we stepped it up a touch, another 6+ months of clomid. So hopeful still, it was just a matter of time. It was going to happen. The wish was unchanged. It still had not been granted.

So we went to a fertility clinic in Madison. If anyone could make us pregnant, grant us our wish, it was Generations. Still so hopeful. We started with intrauterine insemination (IUI). Three crystal beads for those three whole-hearted attempts. We had a 30% chance of success each time… if it was going to work. It didn’t work. So we stepped up our game, we went with in vitro fetilization (IVF). Three more crystal beads for our three fertilized eggs — my little maybe babies. Hundreds of pills, injections, patches, swabs, ultrasounds, trips represented by six shiny beads. All the hope in the world in that tiny little section.

And one of those little embryos, the one that survived to implantation, she took root. My body knew her early. My heart fell in love immediately. It felt so uncertain at first. I was nervous and wary. And then one morning, I was in the garage, getting into my car to go to work and had to run quickly back inside to throw up and… it was so real. Who’d have thought vomit could be represented by a big pink bead covered in butterflies? But there it is.

I didn’t know it was a girl, but I felt so certain. I dreamt of of her future, of the uber feminist mom I was going to be. She was going to always feel beautiful and brilliant and bright. Worthy of all the love in the world, all good things, always. I was in love with her. The dream was real for a minute. So real.

Until it was, just like that, over. A picture perfect baby on the screen, but no blip of life. And all of it was over. Forever an angel baby.

We tried three more times. That’s these three beads. One round of IVF with my own eggs and two with donor eggs. But it was harder — harder on my mind, my heart, and my body. And we experienced unexpected and inexplicable failures. Things that weren’t supposed to happen, things that never happen, happened. We got discounts to “make up for it,” but I didn’t want a discount… I wanted a baby. Our baby. The baby we lost. The baby we’d tried so hard to have.

We had to give up. We had to stop. And things were black. My world was so dark for so long. And I still struggle with the darkness. It makes up a really big part of this story, of my story — it’s easy to see, easy to feel, hard to ignore.

But with letting go also comes some sort of acceptance. And we did some big things for ourselves to facilitate a reset — a shift in mindset, expectations. This bit represents the amazing trip we took, across the ocean and back again, the incredible treat we gave ourselves. The incredible joy I felt watching dolphins play in the water far below us. The profound groundedness and acceptance I felt spending those amazing 12 days with my husband and our two best friends in this world.

The two of us came home fresh and refreshed. Ready to do life together. Knowing that our family is just as real as any other family, regardless of whether we end up with human children someday or not. We’re so lucky to have each other.

And so we come to the last segment on the string. This one is me — big and imperfect. I’ve been through a lot, but now that’s behind me. It’s just my story, the tale of how I came to be this big, imperfect rock. And in front of me — 11 beads. 11 for a new beginning. 10, a number of completion, plus 1 to keep going. (Except you know I love Joe Dirt, so I’m going to say it… plus 1 to keep on keepin’ on!)

Finally, the one big special bead that I made myself, molded out of clay. It’s a heart. My heart. With a tiny heart missing — the piece of my heart my girl took with her when she left us. But she also left something behind, an imprint that won’t ever go away. My heart is changed.

 

It’s been 18 months since we saw our little baby on the screen… only to learn that her heart no longer beat. 18 months since the D&C, the blackest of black, and I’m still grieving. But over the course of those 18 months, I’ve moved from the constant brink of tears to a place where talking about it — walking through the story, remembering what could have been — is something I actually want to do. When someone (anyone) asks about whether/how many kids we have, I don’t want to just say “no” or “none,” I want to say, “Unfortunately, no. We do not have children. We tried for a long time, did everything we could, and even lost one baby, but we don’t have any kids. And we might not ever. It’s been hard, but we have each other and our sweet pup and that’s ok.”

That’s my story. The story the beads tell. And the story I get to share.

Mental Health Monday: Who cares which came first when you’re sitting on a dozen eggs?

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The age old question: which came first, the chicken or the egg?

{Source}

A cause and effect deal.

Technically speaking, it was the egg. But I’m trying to make a point — so we’re going to focus on the long time philosophical conundrum for the sake of today’s discussion.

 

I struggle with a lot of different mental health concerns. Perfectionism came first and came early. I was young when my parents started a daily routine — hands on shoulders, looking me in the eye, “Rachel… relax” as I stepped out the door to school.

Binge eating came next. I don’t remember my first binge, but I do remember the first time I got caught. I was maybe 9 years old and had a jar of chocolate frosting and spoon tucked away in the filing cabinet I kept in my bedroom.

Legit depression took root in high school and it’s been off and on and off an on ever since. More consistently on than off the older I get. And always a bodily focus – dissatisfaction, disgust, hate.

Anxiety became a problem only very recently — panic attacks post-miscarriage. An entirely new phenomenon, though relatively easy to tamp down in the worst moments with medication and sometimes a well-timed phone call to the just-right person.

A veritable laundry list of interwoven mental health concerns.

 

Since I started seeing a therapist in college some 15+ years ago, I’ve spent a lot of time trying to unravel the knotted mess. The perfectionism obviously led to the binge eating — but did the depression contribute as well? Or was the depression a result? And while anxiety really became a problem only in the last two years, was there always some of it there? I mean, I’m definitely an introvert and social anxiety has been a constant since I was very young — how did that factor into all of it?

The age old question.

Which came first, the chicken or the egg?

 

Round and round and round… for years on end. Exhausting. And more importantly, stupid.

Who cares whether it was the chicken or the egg that came first when you’re sitting on a dozen that can hatch at any given time — running and pecking and clucking and so on?! No one. That should be the answer. And when did I realize that? Last week… maybe this weekend. Either way, it wasn’t soon enough.

 

I struggle with an embarrassingly long list of things. (Honestly, I’ve never felt so embarrassed before talking about these things one egg at a time — the whole carton on display at once? Yikes. Please don’t hate me.) But it doesn’t really matter why. Why doesn’t help. The only thing that matters is what I do, how I deal, the actions I take for the purpose of self care and mental health in the now.

Looking for a cause and solving the root problem is a great plan if you’re dealing with a plumbing issue. Or even trying to do some evolutionary mapping (a la chicken and egg). But it seems that lately, with respect to my mental health, getting stuck in that which-came-first, why-why-why mentality really prevents me from moving forward at all. I get stuck in a place that’s not solution-based, but problem-focused, and I can’t get out. In other areas of my life, I despise that attitude — in work, in personal relationships, when dealing with my physical health. Solutions are where its at. It’s time I took the same tack with my mental health. Enough with the why, the psychoanalysis, the which came first. Freud and the chickens can suck it. I’ve got eggs to deal with by the dozens and I don’t have time for the rest.

 

Jesus on Toast: A Paradigm Shift

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Another two months without a post, despite working pretty feverishly. The broken bits of me have been so in control. So many days spent tending to my shattered heart blow after  blow.

“He wept because God was unfair, and because this was the way God repaid those who believed in their dreams… I’m going to become bitter and distrustful because one person betrayed me. I’m going to hate those who have found their treasure because I never found mind. And I’m going to hold on to what little I have, because I’m too insignificant to conquer the world.”

But, struggling or not, I continue to work slowly and deliberately toward a new and fresh sense of clarity. A shift in my own personal paradigm about what matters. About what makes life worth it.

“I’ve learned things from the sheep, and I’ve learned things from crystal, he thought. I can learn something from the desert, too. It seems old and wise.”

The big shift: I’m done with silver linings.

If I were running for president, you could call me a flip flopper. But good news! I’m not now and probably won’t ever. So… since I don’t actually have to worry about what the press and populous think of me,  I’m free to change my mind all I want. Also to inhale. And to have sexual relations with whomever I want.

I could have made much less boring choices…

But. Back to that change of mind, which was my point… change of heart, really.

“Listen to your heart. It knows all things, because it came from the Soul of the World, and it will one day return there.”

I started this blog on the premise of silver linings. The idea that, no matter how awful something seems, there’s always something good hidden inside — a pretty picture in the tapestry. And I believed it wholeheartedly. Mostly. For a while.

But there were some cases where it just didn’t fit. Like when I wrote about the death of my friend Nate. I said, even back then, that sometimes there really is no silver lining. The first crack in my neatly crafted narrative.

More recently, as I’ve struggled through infertility, miscarriage, hopelessness and depression, I’ve become less and less convinced of the master plan/pretty picture and looked harder, further, and wider for something else.

Even in this little video, where forest animals animate a snippet of Brene Brown’s TED Talk about vulnerability, empathy, and compassion, a silver lining comes up as kind of a gut punch… so in constantly looking for one, was I inadvertently delivering the punch to myself?

Jerk moose trying to paint silver linings in everyone's dark clouds. {Source}
Jerk moose trying to paint silver linings in everyone’s dark clouds. {Source}

I’ve never exactly been known for self kindness, but this seemed like a whole new low.

I was searching for something, but maybe I was searching for the wrong thing.

“‘Every second of the search is an encounter with God,’ the boy told his heart. ‘When I have been truly searching for my treasure, every day has been luminous, because I’ve known that every hour was a part of the dream that I would find it. When I have been truly searching for my treasure, I’ve discovered things along the way that I never would have seen had I not had the courage to try things that seemed impossible for a shepherd to achieve.'”

It started when my brother-in-law picked up my copy of Viktor Frankl’s Man’s Search for Meaning — a book written in two parts, the first a description of Frankl’s experiences as a clinical psychiatrist imprisoned in a series of Nazi concentration camps, the second a description of logotherapy, or the pursuit of meaning in life.

It’s a tiny book that packs a powerful punch. But in a way, I feel like the short length actually does it a disservice. When I was reading it, I was incredibly immersed, convinced it would change my life… but it didn’t take me terribly long to read, and I moved on relatively quickly.

As weeks and months went by and I slowly moved past the miscarriage and into another round of IVF, I felt really ready. But when I went through all of it again and still failed, I found myself back at the bottom of the pit, wallowing, binge eating, crying, so quick to anger, frustrated with everything and everyone — convinced that I am worthless, pathetic, and pointless. But also desperate to claw my way back out (and unable to run another marathon to do so).

Sometimes, like with the marathon, my desperation makes me almost manic. (I realize, of course, that I’m not using that term in a clinically correct way — but it is definitely a frenzied feeling, the need for action, to fix things and fix them NOW.) I thought about the book that Stu had ultimately taken home with him and chose that as my starting point. Because if the problem is that one lacks a point, then it seems as though the solution would be to find one,  to search for meaning, yes?

“You will never be able to escape from your heart. So it is better to listen to what it has to say.”

And so I read. I read and read and read… and am still reading. (See book suggestions below.) But the most important thing that all this reading has done for me to date is to really shift my focus. Away from trying to figure out why the cloud is there, from trying to paint the inside of it silver… and instead, trying to find meaning in the storm.

Searching for silver linings can be a fruitful personal pursuit and I’ve done an awful lot of it; sometimes they even exist to be found. It’s shallow, though. And I have come to believe that the search for meaning is more consistently productive and more fulfilling in the long run. Not only because humans are hard-wired for meaning (Rorshach test, anyone? no? What about Jesus in toast?), but also because meaning is determined from within rather than without. As such, meaning is within my control and subject to my will, not the fickle will of a chance-driven universe.

{Source -- and the article it came from is interesting, too!}
{Source — and the article it came from is interesting, too!}

I know that to say meaning is in our control is contentious… and I was unsure of it at first. But according to the experts in logotherapy that I have read (manically, maniacially?) over the past several weeks, there are three paths to meaning:

  1. Creative (what you make)
  2. Experiential (what you do)
  3. Attitudinal (how you feel)

While all three are technically equivalent, attitudinal is the one of the three that is always at our disposal. No matter what. Even in a concentration camp. Even in the depths of the darkest pit. We always get to choose our attitude.

“That’s what alchemists do. They show that, when we strive to become better than we are, everything around us becomes better, too.”

Importantly, choosing our attitude is decidedly not the same things as putting on rose colored glasses or pasting a smile on your face. Because meaning is not the same thing as a silver lining.

For example, I truly believe that there is no silver lining to infertility. I am not going to wake up someday and realize that omg, it was so awesome that I spent five years unsuccessfully trying to start a family or that my miscarriage was the result of a baby that just “wasn’t meant to be.” I will forever grieve those things; they have changed me on a fundamental level. BUT I can find meaning in sharing my struggles. I can find meaning in supporting the women who struggled before me, alongside me, and will struggle after me. I can find meaning in the fact that the family I might eventually have someday will be intentional in a way that not many families truly are. I can find meaning in the education I received through the process — about how love changes hearts, about my own seemingly infinite capacity for hope, the necessity of equality in family building for same-sex couples, the universality of human struggle no matter what form it may take. And perhaps most importantly, I have been given endless opportunities to clarify my values and live an authentic life centered on the things that mean the most to me.

“The boy continued to listen to his heart as they crossed the desert. He came to understand its dodges and tricks, and to accept it as it was.”

After I miscarried, my dad told me that I’d find meaning someday — because the universe was teeming with it. It felt a little like a platitude, but I knew that it wasn’t, because my dad doesn’t speak in platitudes. He was just 10 steps ahead of me down this road, I think. Maybe that’s because it’s a road that can only really be known by experience. By crossing the desert, and listening to your heart as you go.

“‘Everyone has his or her own way of learning things,’ he said to himself. ‘His way isn’t the same as mine, nor mine as his. But we’re both in search of our Personal Legends, and I respect him for that.'”

Maybe you believe that meaning is to be found in a gift from the universe. And you can keep looking for your signs, omens, and silver linings. It’s ok if there’s where you think you’ll find meaning. But I know that I won’t. I can’t believe in meant-to-bes — because if I do, I have to believe that I’m not meant to be a mom. And I can’t believe in #blessed because what does that make me? #cursed? And I know now that silver linings are desperate and unfounded strokes of luck that seem like meaning, but really aren’t. Meaning is something more than that. And meaning is what I truly desire, in my heart of hearts.

Most importantly, when you find meaning in your life… you cannot also be pointless. A meaningful life is never pointless.

“No matter what he does, every person on earth play a central role in the history of the world. And normally he doesn’t know it.”

I’m getting there. To a point where, on more days than not, I can see meaning. I can feel it. And at the very least, that allows be to peek my head up over the edge of the pit.

Last week, on the brink of pregnancy, an implantation scheduled for two days away, I got a phone call from my clinic… canceling the whole thing. Nearly 60 days of drugs and injections, thousands more dollars, hopes as high as hopes could be over our 4 – 5 fertilized eggs and it all came crashing down one more time. I cried. There was snot. I had to call Seth. I went to the office next door to get kleenexes and comfort from a coworker. I worked late. I went home. I ate marshmallows and cried some more while my sweet pup licked tears from my face.

I experienced legitimate grief. Disappointment. Frustration. I dangled my feet over the edge of the pit and looked into the abyss. And then I took a deep breath. And another. Even thought it was nearly 8 pm, I got up, I went into the kitchen, and I cooked myself a nice dinner. I vegged, watched The Bachelorette while I ate. I snuggled Curly on the couch and went to bed. I knew my life wasn’t over. And by the end of it all, I knew we still weren’t quite done trying — because our hearts are broken, but they still beat family… family… family…

“The boy and his heart had become friends, and neither was capable now of betraying the other.”

When my dad told me that the universe teems with meaning, I thought of silver lined clouds and blessings-in-disguise. But I really understand meaning now and I’m letting it into my heart, day by day, little by little. It’s a better way… for me.

[All quotations above are from The Alchemist by Paul Coelho — with thanks to Nicole M. for the perfect and timely recommendation. This girl knows what’s up.]

 

Recommended Reading (if you like any of these ideas):

  • Man’s Search for Meaning by Viktor Frankl
  • The Will to Meaning: Foundations and Applications of Logotherapy by Viktor Frankl
  • Meaning in Suffering: Comfort in Crisis through Logotherapy by Elisabeth Lukas and Joseph B. Fabry
  • The Alchemist by Paul Coehlo
  • The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Bessel van der Kolk

Smiles for Miles: The Time I Ran a Marathon

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Approximately 18 weeks and 500 or so miles ago, I lost my shit.

Lost it.

I was at an all time low. Drowning in grief and self-pity, slipping further and further away from my family, my friends, my self and into a deep dark place that I didn’t honestly want to leave. Not really. It was easier to cry myself to sleep and keep my eyes closed. To sleepwalk when I had to and disengage at every possible opportunity.

It’s better to lose your shit, though. Better than depression. Because losing it means action… and even crazy action is better than complete apathy.

The crazy thing I did? I signed up for a marathon. Not a half-marathon. The whole shebang — 26.2 miles. In Washington, DC. On March 12th. I didn’t even pay the couple extra bucks to make it refundable. I was all in.

I ran 5 times a week for 18 weeks. Mostly outside. Mostly in Wisconsin. Almost entirely in the winter. There were some amazing days and some awful days. Some big blisters and some seriously raw patches of skin. I listened to many books on tape and consumed an inordinate number of Gu gels. I cried, I felt my lips turn blue and then watched them become pink again, I learned that cotton can be both lovely and the fabric of Satan.

Training montage. (Not picture: blisters, chafing.)
Training montage. (Not picture: blisters, chafing.)

Running became my sole focus. The marathon was what I lived for. And in doing so, I looked forward. I moved forward, physically. And because of that, I couldn’t stay stuck in that hole, in that dark place. It became impossible.

 

I don’t even know where to begin talking about the actual marathon. I had five and a half hours to think real hard about it and I’m pretty sure that during that time I had about five and a half million blog-worthy thoughts… but they must have been expelled with all the vomiting or something (it was intense) and now I’m left with all the feelings and none of the words.

The running was of course a huge and important part of it — I trained for the marathon and I finished it — but it was, for me, about a lot more than just the miles and the motion. My heart was in that race and along the course. My heart was almost literally on my sleeve, perhaps rather on my arm. And it was my heart that got me through it. It was what happened to my heart that made it all worth it.

My arm, my dedications by mile, the morning of.
The people I ran with, mile by mile.

I wrote the names of friends and family, people who inspire me and fill my heart to bursting with love, all down my arm. A dedication for every mile. But not really a dedication, exactly. I didn’t run for those people… rather, I ran with those people. For a mile at a time, my thoughts were completely focused. Completely positive.

And then, over and over and over again, I’d see a bright blue shirt, a blonde buzz cut, and I’d suddenly know it was my husband on the course. And my dear friend Jess. And I couldn’t help but beam.

Mile 14

Then a blur of green on two wheels, a crazy beard, and my friend Rob was there on his bike — sherpa-ing, willing me on, mile after mile. (And oh my goodness, he saved me in those last 5 or so miles.)

Mile 25

And then at the end. I’m starting to cry now even thinking about it. I heard my name, I saw the smiles, the cheers. My friends, my beautiful, beautiful friends were there waiting for me, five and a half hours after the start — Seth and Jess and Ellen and Rob and Erika and Stephen. Bright pink shirts that screamed that I rock… And I smiled and smiled and smiled. Have I ever in my life felt that loved? That supported? I’m honestly not sure that I have.

Marathon Photo

Not because I haven’t been that loved and supported in my life. I know that I have. I come from loving stock, there’s no denying that. But I think maybe it took a marathon to really believe it. To believe that I could be worth it, to recognize that all those names scrawled down my arm (and so many others) had always been there for me in exactly this way, on other courses, at other times, through other struggles and to celebrate different victories.

 

Why did it take a marathon? Why wasn’t the miscarriage enough? Grad school? Depression? Anything else? I’ve been supported in a way that no one could possibly deserve through all of that. So why not that?

I don’t know. But it was the marathon that did it.

 

Conveniently, I had a therapy appointment the Thursday after I returned from DC. In the hall, before we even got to his office, Dr. C’s first question was: soooo… how was the marathon?

I sat down and told him that it was the most amazing experience. That I’d never in my life felt so loved and supported.

He told me that was a totally weird answer and asked about my legs.

 

I guess it never really was about my legs.

It was definitely physical in that it was about proving to myself that with respect to my body, despite infertility and miscarriage and faulty brain chemistry, I can still be in control. But more than that… It was about finding my lost shit. About letting my heart feel something really effing amazing. For that, I get a medal.

Medal

And to everybody else, my eternal gratitude, appreciation, love, respect, and adoration. I hope you get a chance to feel what I felt, smile like I smiled — marathon or otherwise. Let me know how I can help!

I wear leggings as pants. And other confessions.

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Confession #1: It started with yoga. All the other girls were wearing leggings and it seemed like they were a bit more comfortable than me.

So I bought some.

Sister to sister selfie -- do I look ok???
Sister to sister selfie — do I look ok???

And then it got real cold, so I wore them under my running pants too. Until it got a bit warmer. And I lost the top layer. Leggings for running too.

And then, little by little, leggings on a random snowy Wednesday. I told myself it’s because it’s so much easier to slip on my boots this way, but… but it’s not… it’s…

See? Right into the boots! Easy peasy!
See? Right into the boots! Easy peasy!

I WEAR LEGGINGS AS PANTS!!!

I’m one of those people. Leggings as pants people. Do you hate me?

 

Confession #2: I flew down to Florida the day after my birthday from Central Wisconsin to Ft. Lauderdale via Detroit. That wasn’t the original plan, but a delay resulted in a rebooking and a re-routing and I had a couple hours to kill in Detroit. I hung out at the far end of the A terminal for a couple hours, reading and texting and Facebooking, like I do, until 30 minutes before my flight when I super responsibly got up to use the restroom one final time before boarding. As I walked in the door of the restroom I suddenly noticed the “men” sign on the door and quickly backed out — that was almost awkward! — and I ducked in the next. Crisis averted.

It was an odd restroom though. I needed a wastebasket in the stall (you know), but there wasn’t one. Ugh. Antiquated. No matter though, there was one near the sinks. So I washed my hands and ducked around the corner for a paper towel… at which point, a big long row of urinals came into view. My heart stopped, I whirled around, and in walked a man who looked just as confused as I felt.

Turns out… there are TWO doors to the men’s room. I backed out of the first only to walk right into the second.

 

Confession #3: I’m not a graceful person and falling while I run is kind of my thing. So stupid. And after something like my third fall in the last couple months, I have two seeeeriously bruised and skinned knees. I’m a 32 year old woman who is walking around Wisconsin in February with two skinned knees. For shame.

And it’s not even the ice, really. It’s tripping. Tripping over wonky sidewalks and the like. Even my pretty aqua green shoes are all nicked up at the toe. I want to be PERFECT at the marathon (since lord knows I won’t be fast), and these nicked up shoes and knocked up knees (at least my knees can get knocked up! ha!) are not going to do it for me.

 

And a million other confessable moments: I recently bullied (like, maybe she should tell someone about me…) a 50-year-old woman into reading the entire Harry Potter series and I don’t regret it. I fed my dog handfuls of butter after she swallowed a burr because it seemed like it might make it slide down her throat. I’ve spent way more hours than any adult should reading in the bathtub over the last couple weeks. With bubble bath. When I finally vacuumed my house last weekend, I recovered enough dog hair to make Curly a super personalized sweater and she doesn’t really even shed — that’s how long it had been. But worst of all: I let myself slip back into a dark place.

 

And that dark place, my darlings, is where I’ve been. I’m not sure exactly how it happened. It started the week before I traveled, I think… I got kind of busy and stopped doing the daily mindfulness practice I’d been cultivating. And then when I fell the last time, I stopped going to yoga because it really, really hurt my knees. The dark thoughts started creeping in, piling up, and I latched onto those again. I stopped writing, because I didn’t want to be a downer anymore. I spent an evening, and another, and another, even one particularly ugly weekday morning, sobbing about how much I hated myself. And I meant it.

Danger zone.

 

The truth is, I’m in a bad place. A place much worse than a men’s bathroom. (Granted, it really wasn’t a terrible place to be until I realized where exactly I was.) And I’m going to have to work really stupid hard to get back out again.

Confession #4: I feel really, really tired and I’m not entirely sure that it’s worth it.

I suspect that’s the depression talking, but it feels pretty true to me right now.

 

Interestingly, I know for a fact that there isn’t all that much “worth it” about running a marathon. And yet, I’m absolutely desperate to do that — willing to put in mountains worth of work to get there.

marathon training

So maybe I just need to print out some sort of anti-depression training plan and assume that it will be equivalently worth it. Fake it til I make it. Mile after mile.

 

So if you’ll excuse me, I’ve got five miles to go this evening yet — Curls spent last night puking, and I cleaning it up, so when 5:30 am rolled around this morning, I was in desperate need of a bit more sleep. But the treadmill calls and I have faith that crossing the finish line in DC in a couple of weeks will be worth it to me. Faith as well that putting in the work to climb out of the oubliette,* let the light in, and work to not be in such a dark place, will be worth it too.

 

 

*I use Audible to listen to books while I run. I’ve never read any Neil Gaiman before, but I couldn’t really ignore the legions of people I super respect who love him anymore and when I saw that American Gods was nearly 20 hours long (woo hoo! all that bang for the buck!), I jumped on it. Within the first 5 miles (I measure books now in miles rather than chapters), the main character mentions an oubliette. YES.

As pointless as an inside out raccoon.

depression, Long-Winded Metaphors, Uncategorized, , , , , , , , , , , ,

Once upon a time, some medieval a-hole invented the oubliette: a dungeon modeled after the mythical bottomless pit. The only entrance, a trap door in the ceiling, was so far overhead that the person banished to the depths went mad with hopelessness, knowing they were left in the dark to be forgotten. (Or something like that.)

Clearly, the aforementioned medieval a-hole was familiar with the concept of depression. And weaponized it. Genius. Mad genius.

Today, I greet you from the depths of the oubliette, depression having settled in like an old friend I never really wanted to meet in the first place. But here he is and the associated fog will likely cover the faint glint of light from the mouth of the pit for a while. It’s my job (with the help of medication) to work really, really hard to remember that it’s not actually hopeless and I do actually matter. But first, how did I get here?

 

Are you familiar with Jenny Lawson? Alias: The Bloggess? Author of Let’s Pretend this Never Happened and, more recently, Furiously Happy: A Funny Book about Horrible Things? I kind of adore her — her irreverence and frankness about mental illness is a thing of beauty and I think she’s done a lot, lot, lot of good for a lot, lot, lot of people who might otherwise feel very alone. Her point: we’re all broken, some of us more than others, and for those of us in whom that means mental illness, it is a legitimate disease worthy of medical treatment. And that is all. That and a silver ribbon to be worn with pride — I am surviving. No shame.

Anyway, I’m reading Furiously Happy right now and the star of the show is Rory the furiously happy raccoon (see book cover):

{Source}
{Source}

Rory is a taxidermied raccoon. Taxidermied to a state of permanent, furious, happiness.

I kind of dig Rory and all his maniacal excitement. And I fully understood what it meant to be a taxidermied raccoon — once upon a time he was alive, he died, his skin was removed, he was stuffed, posed, preserved, the end.

But then last weekend, this horror show took place in my backyard (not a fan of gruesomeness? scroll by real quick):

inside out raccoon

Not actually my backyard, of course, but the backyard that butts up to the edge of mine. So close enough. That’s a raccoon. Hanging from an apple tree. Having its skin removed.

An inside out raccoon.

#Wisconsin

I was disturbed on Saturday, but when it happened again on Monday morning (happened again on Monday morning because #Wisconsin), less so. I mean, that’s how you make a taxidermied raccoon, right? Even a furiously happy one was once upon a time dangling from something having its skin removed.

The premise behind the idea of being Furiously Happy, a la Jenny Lawson, is that when you suffer from severe bouts of depression, it steals the joy right out of your life. So in those moments when you can be happy — you should be furiously so. Embracing life and adventure and goodness and joy to the fullest in those moments when it is in your power to be in that place, when the fog isn’t hanging over you, when all the exclamation points haven’t mysteriously vanished from your life. Or, as is apropos here, when you’re not busy being turned inside out, be like Rory.

I liked that analogy for depression — an inside out raccoon with the potential to be happy again, given a little help from a skilled taxidermist with a good sense of humor.

But then again, once the inside out raccoon suit was off the bare raccoon body, my neighbor took the pelt (is it a pelt? is that what we call the removed skin/fur???) inside the house and left the (now naked) raccoon body hanging from that tree. It swayed there for a long time and I couldn’t look away. What do you do with a dead, naked raccoon, I thought? I mean, people don’t eat raccoon, do they? That naked raccoon isn’t going to get furiously happy — just his little suit. So… what’s his point?

My neighbor came back outside with a bucket, untied the raccoon, dropped him inside, and carried him away to who knows where. To nowhere, probably.

And I realized that I felt past the point of the little raccoon suit with the potential to be happy again. I felt a lot more like the dead, naked, slightly swaying, completely pointless raccoon left hanging on the branch. It was just grief at first. I was so sad, and with good reason, but I had moved past that point. Somewhere in my grief and brokenness, I had convinced myself that that’s all there was. That I was pointless.

I had let myself slip back into the oubliette.

 

The thoughts that came and went (and still sometimes come and go) are scary. I wished to not be loved — because then it would be easier to disappear, no heartache left behind. I wished for tragedy of the variety that was unquestionably not my fault yet would somehow lead me to oblivion. For an end because why was I bothering anyway. I did not matter and that the people who for some reason thought that I did would be better off without me… when they realized that there were prettier wives that were good at keeping their families healthy, children with the ability to produce grandchildren, sisters that don’t harbor ugly jealousy, writers with more talent and less baggage, friends with the ability to smile, nieces without drama, etc. I want to be all those things to all those people. I have been none of them. I had no point.

I don’t want to lie to you. I’m still there to some extent. It’s a bad neighborhood of the mind, as my aunt would say, and I wander there frequently these days. But I do have some good days too. Thanks to the people that love me, goodness knows why, and the mental health care I have sought — needed to seek. But maybe most of all this time because someone else heard what I said and shared their own story with me and I thought for a second, hey, we just connected. And maybe connection is enough of a point. Enough of a reason. Something that matters.

And connection does keep happening, when I really stop and think about it. It has for a while and it has very frequently recently. In ways that I didn’t really expect. Not just those who have experienced the loss of a pregnancy or a child, but those who have been to broken places for other reasons too. People who look so shiny and bright on the outside that there’s just no possible way for that to not be the whole story, except of course there’s more. And they said to me, “hey… me too, because this thing…” And dang. That’s powerful stuff.

On the surface, it seems a little bit like misery-loves-company, but it’s not. It’s a lot more like hey-let-me-lend-you-my-strength. Let’s-walk-together-for-a-sec. I’m-going-to-hug-you-gently-with-my-words. I’m-going-to-show-you-something-tragic-yet-beautiful-and-remind-you-that-it-is-possible-to-be-furiously-happy-again.

For those moments, for those people, and for the people that love me… that I love back… I’m going to hang on. I’m going to remember that even an inside out raccoon isn’t really pointless. That the bottom of the oubliette is temporary and that somewhere above me, no matter how far away it seems, there is light.

Aunt Becky, PhD, and the Prayer of Relinquishment

Pregnancy or Lack Thereof, , , , , , , , , , , , , , , , , ,

At the end of the race, there are almost always bananas.

At the end of the rainbow, there is supposed to be a pot of gold.

At the end of a journey, a destination.

 

{Source}
{Source}

And at the end of the five stages of grief, there lies acceptance.

I don’t know that I’ve ever grieved heartily and with enough awareness as an adult to really notice any given stage of grief. Not until yesterday… when in less than 24 hours I managed to go from stage 1 (blissful denial) to rapid vacillation between stages 2, 3, and 4 in a torrent of tears and snot (so much snot) before I finally settled into a puffy-eyed, rosy lipped (my lips get very bright pink when I cry a lot) depression.

Puffy-eyed bedtime and only the Chamber of Secrets could provide me solace.
Puffy-eyed bedtime and only the Chamber of Secrets could provide me solace.

 

So, what happened, exactly? We’ll do it stage by stage.

1. Denial

I had a lovely time on Sunday night, the night before the embryo transfer. My cousin-in-law Megan had her second annual Take Steps for Crohn’s and Colitis fundraiser at UPaint and Party in Wausau. Almost everyone painted a gorgeous picture of a lovely little bird silhouetted against a bright sky flying from it’s cage. My painting somehow got a dementor in it, but I still had a blast. It was nothing but fun and I was in good spirits about Monday’s transfer. Yes, I only had three embryos, but it could be great! That was three chances — making for a potential family of five humans and my sweet Curly girl to boot. I was good.

The dementor just kind of happened...
The dementor just kind of happened…

Even Monday morning, though nervous and stressed about heading out the door a bit late, I was still making The Jerk-based jokes with my family.

Courtesy of my Shabsky.
Courtesy of my Shabsky.

And that’s all I need…

2. Anger

We arrived in Madison a mere 4 minutes late for our scheduled appointment. Big thanks to the state of Wisconsin for upping our speed limits to 70 mph — big help yesterday. The nurse brought us back to the procedure area, same as before, and began to collect vitals, provide information, prep us with our gowns and caps and booties and all that… and I noticed that all the while, she kept saying “the embryo.” Part of me assumed it was because they were planning to just transfer one, which was always the goal. A much darker part of me knew what it really meant though.

There was only one embryo left. Two of the three we had, the three I had been banking on, had stopped developing. Just stopped. We were going to transfer only one because we had only one.

The one. I'm sure someday I'll make Highlander jokes about this. Too soon.
The one. I’m sure someday I’ll make Highlander jokes about this. Too soon.

And that one? Not even ideal. Not sure on the details… and this image means pretty much nothing to me (no wonder they call it a ball of cells, eh?) so I can’t exactly glean anything from that, but something about it not being as developed as it should have been — an early blast instead of a mature/late/something one. I don’t know. It was hard to hear the embryologist over the buzzing in my ears that always comes when I start trying to hold back tears.

I was so unbelievably, inconsolably (even by Valium) sad. And angry. ONE?!?! After ALL THAT?! After all we had been through, all the thousands of dollars and hundreds of injections and ultrasounds and trips and tears and everything… just one. One shot. One sub-par shot.

But we did SO much. We’ve been through SO FREAKING MUCH. And so many people who do NOTHING, absolutely NOTHING, but get it on once or twice have babies all the dang time. ALL THE TIME. Why are they special? Why am I not? Why are they so obnoxiously #blessed and is #cursed even a thing?! Because I obviously am. What’s wrong with me that even with thousands and thousands of dollars of medical intervention this is still the best I can do??? One.

And if that one doesn’t work? There’s nothing in the freezer to try again. Nothing. We have to start over from zero. Physically, emotionally, financially from zero. Do it alll over again. And I know I’m too close, and I know this isn’t where we are yet, but I can’t. I shouldn’t have to! I don’t want to!! It’s not FAIR!!! (Which is truly the worst thing you can say as an adult because by this point in my life I am well aware that life is not fair and nobody every said it would be.)

3. Bargaining

But it only takes one. One is enough. One is better than zero and I’ve prayed and hoped and begged and done everything right. Everything I could do. I would do anything — hasn’t what I’ve done so far proven that? Wouldn’t we be good parents? Don’t we deserve a family?

Even just this weekend, the priest talked about the little boy who made a miracle happen by bringing Jesus his meager loaves and fishes. I’ve brought him mine, haven’t I? With everything I have done, all that I’ve been through… it’s time for our miracle now, isn’t it?

And there it is… the little embryo between the two air bubbles.

embryo ultrasound labeled

Or so they tell me. I wouldn’t know. As far as I’m concerned, this actually could be a print out of an ultrasound from a cow and I’d be none the wiser. But that has to be good, right? That you can see where it is? Inside me? Please, I’ll do anything to keep it there, to make it grow, to let it be life.

4. Depression

But then again, it really doesn’t matter anyway. It’s out of my hands and come next Wednesday, when we can finally test, this will all be over. Yes, pregnancy is a possibility. But really? If after all that, we were left with one embryo. Just the one, just hanging in there, is it really very likely that we’ll be pregnant at all? I have lost my hopefulness, my optimism. The best of it, the stuff on the inside. I have to keep saying to everyone, “Oh yes! It’s very exciting! We could be pregnant right now– not too much longer ’til we find out! Keeping our fingers crossed!!” When really, I know otherwise. I know, you know? And the best news of all — my attitude will not change anything and if ONE MORE MOTHER EFFING PERSON TELLS ME OTHERWISE I AM GOING TO FREAKING LOSE IT. (Oops… that bit might have been anger again.) You cannot visualize or positive energy or pray or wish or hope yourself into pregnancy. It’s biology. And my biology hasn’t really felt like cooperating so far. It is what it is (sorry, Aimee — I know you hate that phrase, but isn’t it the best depressive phrase kind of ever?) and I am where I am and what’s done is done and it’ll all be over soon.

…

Back and forth and back and forth, sometimes anger, sometimes bargaining, sometimes depression over a frightening number of cycles since yesterday afternoon. And then sometime this morning, as I chatted with my friend Marie (Seth, if we ever do have a baby, her middle name (or even his middle name, to be honest) is going to have to be Marie — fair warning) about normal things, the things we chat about all the time, and I felt my funk start to lift just a bit I started thinking about what acceptance might actually mean. And I realized that Seth’s Aunt Becky had kind of already set me up for it a while ago, believe it or not. Probably on purpose too. She’s super wise and all knowing like that. Like Dumbledore. A doctor even, the good kind, PhD-style like me. Her PhD isn’t actually in theology, although as a self-taught theologian she’s quite impressive, if I do say so myself.

Aunt Becky is on the right -- she says cool things like "academic wonks," is the homeliest in a good way person I know, AND throws groundbreaking bachelorette parties for her colleagues.
Aunt Becky is on the right — she says cool things like “academic wonks,” is the homeliest-in-a-good-way person I know, AND throws groundbreaking bachelorette parties for her colleagues.

A few weeks back she sent me a link to this article about the prayer of relinquishment:

The Prayer of Relinquishment by Catherine Marshall

Maybe I’m really late to the game and this is old news for everybody else, but in this moment, I’m so crazy grateful to Aunt Becky, PhD, for sharing it with me and I can’t recommend reading the whole thing enough if you’re in any capacity inclined toward spirituality. It’s so good.

This is the crux of it all, at least to me and right now:

“…it says, ‘This is my situation at the moment. I’ll face the reality of it. But I’ll also accept willingly whatever a loving Father sends.’ Acceptance, therefore, never slams the door on hope.

Yet even with hope our relinquishment must be the real thing, because this giving up of self-will is the hardest thing we human beings are ever called on to do.”

5. Acceptance

So as Catherine Marshall says Mrs. Nathaniel Hawthorne said once upon a time… why should I doubt the goodness of God?

I wear my bracelet all the time, the one that says “Always.” as a reminder that God is good. Always. No matter what. Why would this moment be any different? Pregnant or not, my life will go on. Pregnant or not, Seth and I will still love each other and we’re really lucky to have that. Pregnant or not, our little family will continue to flourish and decide what to do from there. All I can do right now is accept what is to come, relinquish the notion that I have any control over it, and carry on for the next several days until we have an actual answer to which I can react.

Yes, it’s hard. So so so hard. But as Melissa told me last night, even Jesus got angry. Why shouldn’t I? God gave me all these emotions and I’m free to feel them. They’re not wrong. They’re normal. And this is so hard. It’s no wonder that I feel angry and sad and depressed and worried and even hungry at times. (So so hungry.) We feel things. It’s what we do.

 

So stages of grief and all that aside… we had an embryo (i.e. the embryo) transferred to my uterus yesterday. At present, it’s a little ball of cells floating in space and the hope is that it will eventually implant into the uterine lining, effectively establishing a viable pregnancy. I don’t know how likely that is or is not. All I know is that on August 5th, we’ll do a blood test for HCG — a pregnancy test (not the pee on a stick kind). A negative is the real thing. Negative = negative. A positive could still be a false positive though, so if we do get a positive result, we have to do another blood test two days later on August 7th to look for rising levels of HCG, which will effectively confirm the positive result. It would be lovely to think that maybe I could look for signs and symptoms of pregnancy in the interim, but with the hormone overload my body is currently going through, I already have just about all of them and there’s no way any sign of actual pregnancy could be differentiated from the craziness happening in my body baby or no… so we wait.

Wait and accept and relinquish and let that little bit of hope in because that’s pretty much all we can do.

Crazy — ha ha, whatevs, or uh oh.

Seriously, , , , , , , , , , , ,

I get lots and lots of sleep. So so so much sleep. Not because I go to bed early or because I turn off all electronics an hour before bed or have a great bedtime ritual or anything. Nope. None of those good things.

I get a ton of sleep for one reason only… because I am terrible at waking up. Terrible!

My favorite place... bed.
My favorite place… bed.

Always have been, probably always will be. It’s ridiculous. Ask my husband. He hates it. It’s not even a snooze problem. It’s a shut-the-alarm-off-and-go-completely-back-to-sleep-without-even-realizing-the-alarm-ever-sounded problem. (Or wake-up-imagining-I-overslept-at-3:18-am-and-immediately-jump-panicking-into-the-shower-only-to-emerge-squeaky-clean-and-painfully-exhaustingly-ridiculously-early problem, granted that occurs less often these days.)

Over the past month or so, believe it or not, my inability to wake up has gotten even worse, but not for the normal (non-)reason. This time, it’s because even though I’m sleeping (for hours and hours and hours, as I said above), I’m still exhausted. Exhausted from some seriously vivid dreams. Mundane, but vivid.

So ridiculously vivid that I’m legitimately unsure at times if something is a real memory… or if it was just a dream. I literally cannot tell. And it’s freaking me out.

My depression is no secret, of course. We’ve talked about it before. Sometimes I feel down, really really down, and talking about it often makes me feel embarrassed, but it’s part of me and I do myself and others a disservice if I fail to tell the whole truth, and nothing but the truth, except for humorous embellishment, so help me God. So I should probably mention this little bump in the road as well.

Melissa-- light

True story: a friend who recently discovered my blog says I have to come down off my pedestal now. Fair enough. 🙂

I have dealt with depression, off and on (except I think we know that it’s always really “on” in some capacity or another) since I was relatively young. As part of treatment, I have been on a number of different anti-depressant medications. The tricky thing about antidepressants is that they 1) take a while to work, 2) work differently for every individual, and 3) there’s no great way to know a) which one is going to work or b) what the exact side-effect profile, if any, is going to look like for you personally.

Oy– the uncertainty! It’s pretty traumatic, especially for someone who suffers from delusions of obtainable perfection. (Self-diagnosis.)

Most recently, I switched medications after a side-effect of the one (in me, specifically, of course) proved itself to be dramatic weight gain. And when I say dramatic, I mean it. Like 10-pounds-in-a-single-week dramatic. I could see that, I could feel that, but so could my prescriber. So after giving it some time (and a lot of pounds) we switched to something else. It’s been smooth sailing for a good six months or so. Maybe closer to a year. And then all of the sudden…

The dreams.

For the most part, I can deal with side-effects in a rational manner. I’ve dealt with dry mouth and weight gain, jitters and minor insomnia. Little things that I can see, attribute to the medication, and say, “but it’s worth it because the depression is at bay.”

Oh so worth it.

I tried to do the same thing for the dreams.

It’s just a dream. So you’re a little tired, have some tea. No big deal, you’re still getting lots and lots of sleep, as per usual.

Until I couldn’t. Because I’m too afraid of crazy. And this feeling? This feeling is crazy. Not ha ha, you craaaazy. Or you think I’m crazy? Whatevs. More along the lines of crap, this might be legitimately crazy. The uh oh one.

To not be able to tell what’s real… that’s too much.

So I went to see my prescriber one early morning this week. I got out of bed, quicker than usual, because she’s just the best, best, best. So good at simultaneously laughing at my jokes (because humor is generally how I deal and acknowledging that I’m funny is basically the best compliment a person can give me) while also taking me and my reports of the symptoms that are concerning me seriously. More clinicians could learn from the brilliant Celeste, I think. (Plus, she has an excellent name. Kudos to her parents.)

We’ve got a plan of action and a plan for ongoing communication about the symptoms. I’m tired, the dreams probably won’t go away immediately, but I do feel a sense of relief just knowing that the crazy (the scary kind) can be controlled, prevented, addressed, whatever. Thank goodness.

 

The thing that was most interesting to me in this instance is that I’ve frequently felt crazy in the first two ways I described. The ha ha way– I mean, this hair, right? It certainly has an air of crazy about it (that’s the frizz). And even the, oh, right, you think I’m crazy– whatevs, kind. I have tummy troubles and a weird case of hand eczema that I believe to be associated with gluten. Doctors don’t believe me. They think I’m crazy. Whatevs.

But being called crazy, even by a medical professional (implied only, granted I haven’t actually read my chart), frustrating as it may be, is not, in fact, scary like this is scary. That’s what this kind of crazy felt like.

And paradoxically, that actually makes me feel kind of proud. Because it means that I am trusting my body. Trusting my own symptoms and my own intuition to know when something is real, regardless of whether it is recognized.

I know that there is something wrong with my gastrointestinal system. I can work with it sometimes, but not all the time. A diagnosis of we-don’t-know-you-must-be-crazy (anyone know the ICD-9 code for that???) is not helpful, exactly, but I can live with it. I can work with it. I can continue to trust my body and keep trying to calm it down however I can. Likewise, with the eczema on my hands and feet, I see a link with gluten and flares. Yes, there are other things too– stress and hot weather and travel all seem to play a role, but not if I stay away from gluten. So I stay away from gluten, and the doctor says I’m crazy for it, but that’s ok.

Not this time though. This time, crazy is not ha ha. It’s not whatevs. It’s scary. And I trusted myself to know that I needed to seek professional medical help. I have a good relationship with Celeste, I trust her and get the sense that she trusts me to report accurately. She worked with me, with my crazy, to make a plan. I can get on board with that too.

Annoying as it may be (because in my dreams last night, I simply could not understand how my math professor was working out the problems and I was never going to pass– a new story every night), I am encouraged by my ability to trust myself, even in my crazy, to be able to distinguish just what type of crazy it was. When the push for help is not only meaningful, but necessary. And I’m grateful that Celeste seems to get that too.

IMG_4550

Velcro.

Long-Winded Metaphors, , , , , , , , , , , , , , , , , ,

My sweet little sister got all excited when she saw that “Velcro.” was the title of an upcoming post so I thought I’d flesh that one out first. I think it’s a little weird that velcro would excite her so much, but who am I to question someone else’s passions? I’m nervous that I’ll disappoint, so as a preemptive measure, I’m posting for your visual enjoyment a false-colored scanning electron micrograph of velcro because it’s been one of my favorite SEMs since I first saw it a long long time ago:

{From the Columbia University Lamont-Doherty Earth Observity... science, man}
{From the Columbia University Lamont-Doherty Earth Observatory… science, man}

Today (as in the day I started writing this post, which was actually several days ago) I decided that I will never purchase another pair of velcro shoes. Terrible choice.

Little odd for a thirty-year-old woman to have to say something like that. I know. But I got these super cute shoes last fall from Zappos.

{Zappos VIP = heaven for a giant-footed monster girl like me}
{Zappos VIP = heaven for a giant-footed monster girl like me}

I always expect the shoes I order to a be at least a little bit different when they arrive on account of no store in their right mind would ever picture the size 11– things become considerably less cute the larger they get, it’s a fact. So when they arrived and they were still super cute, I was thrilled… except that I discovered that they had a velcro closure, not some sort of buckle or clasp. Sometimes surprises can be good (like when your friend rents herself an accordion player as entertainment on her own birthday), and I really didn’t think the velcro would be such a big deal.

My friend Suma invited us for dinner and a "surprise" on her birthday-- the surprise was literally that she had hired an accordion player. Too cute!
My friend Suma invited us for dinner and a “surprise” on her birthday– the surprise was literally that she had hired an accordion player. Too cute!

(Side note: I used to literally feel embarrassed at mentioned my shoe size, as though I had anything to do with it. Now I’m embarrassed that I felt embarrassed about it. My feet are my feet. Short of binding them, ancient Chinese-style, there’s really nothing to be done. Just like my square jaw. Sometimes we just have to accept the body we are in and be glad to have it!)

Unfortunately, for the last year I’ve been walking around in these cute shoes getting more and more frustrated at the dang velcro.

(And yes, spellcheck Satan, I understand that velcro should technically be Velcro, but I’m not going to capitalize now or ever– on principle. Because you told me I should.)

Turns out, velcro is a terrible way to secure the strap on a shoe like this. Especially in this size. Just terrible. The closure kept getting worse and worse every time I wore them and today, I couldn’t even make it from my office to my car without stopping twice to reconnect. Lame. No more wearing those shoes.

I wonder about the cobbler (is that what shoe designers are called? or just shoe fixers? shoe makers? let’s just say cobbler for the sake of making my upcoming metaphor sound good…) who would use velcro as the sole closure for an adult-sized mary jane style shoe. It just doesn’t make sense to me.

…and here comes that metaphor — ginormous leap…

So what about the soul cobbler who seems to have attached my mood, disposition, whatever, to the sun with what basically amounts to velcro?

You know that feeling you get in your stomach when you miss a step and feel like you’re going to fall?

It’s like that for me, teetering at the edge of depression, now that the sun is disappearing earlier and earlier each day. Here in Wisconsin, it’s completely dark by 7:30… then 7:20… (and that was few days ago… we’re looking at about 7:00 pm now…) we’re scheduled to lose 1.5 more hours of daylight by the end of the month. Factor in the end of daylight savings time and that puts us at dark by 5:00.

As much as I love everything about fall– the colors, the crispness, the smells, the holidays– the sun going away makes everything else slowly dull.

As the sun progresses, so does my mood.

Good lord, I could never survive in Alaska… not without being diagnosed as seasonally bipolar, anyway. Manic 6 months of the year, depressed the other. I guess at least I would know it’s coming…

but no!

I’ll never go north of the UP! (Hopefully someday I’ll convince Seth to come back to you, beautiful UP!)

Don’t worry, I’m using my special light (the one I cleverly cropped out of the phone picture I posted in my most recent post– it’s right behind that and I turn it on every morning in the morning, and sometimes for a little boost in the afternoon) and I’m aware of these feelings and I really think the stupid shoes were not helping. So with my light, and my trusty [read: ugly and oh so comfortable (I’m sorry for making fun of you, mom)] Danskos, stomping through the leaves to and from work has been kind of ok (also, I love leaf stomping). And taking my pup on weekend walks in my blue paisley waders is even better. Again, no velcro.

Stupid velcro.

Here’s the hard part, the thing I hate myself a little bit for finally admitting:

FALL IS NOT MY FAVORITE.

In theory, it is, of course, but in practice… man… it kills me. I want to love the leaves and the pumpkins and the corn stalks and the chill in the air and such. But my velcro lets go as the sun slips down earlier and earlier and I simply cannot love it as much as I really want to.

But, for serious, I did great with the fall decor this year, did I not?!
But, for serious, I did great with the fall decor this year, did I not?!

As such, it’s now finally time to admit the following:

SUMMER IS ACTUALLY MY FAVORITE.

In theory, again, it shouldn’t be… I don’t like hot and sticky, when my head gets hot my hair gets crazy frizzy, and mosquitoes and black flies and other insecty creatures make me crazy. But, all that sun? Late night runs when the sun is just slipping below the trees? Windows open, breeze in the house… I kind of do love all of that.

Maybe that’s the real reason I want to move to the UP so badly… because even summer there isn’t so hot. It’s gorgeous every single day. And the greatest of all the great lakes– the Superior one, is the most amazing place in all the land!

(Actually, my grandparents lived there when I was little and trips to the UP were when I got to see them and all of my cousins on my dad’s side so it was really my dream to live there just because I loved how it felt to be in the UP when we were all there. But that was then. Summer is it now. Part of it, anyway.)

 

I have always tanned easily– it’s my sturdy Polish peasant stock. (I don’t remember if my mom or grandma said that to me, but I love it so much. I like coming from sturdy stock! It makes me feel like in a past life I wrapped my head like a babushka and harvested wheat from a sun-filled field… yes, I can romanticize even back breaking labor.) And even when I do burn, it generally fades into a lovely brown relatively quickly. I love Cabo San Lucas more than any vacation destination I have ever had the pleasure of going to (even Hawaii! even Europe! I’m so serious– love love love that dry, sunshine-filled heat). And SoCal is always calling my name (now that I’ve been there and when I forget momentarily that earthquakes scare the pants off me; even if they’re bitty… bitty earthquakes, not bitty pants).

Great news! There's both sunshine AND iguanas in heaven!!
Great news! There’s both sunshine AND iguanas in heaven!!

I guess I’m just a full sun kind of plant. Goodness knows I am always thirsty. (Do you know me in person? How often have you seen me without my Nalgene? Did you ask me if it was in my car or in purse if you didn’t see it?) I whither without extreme amounts of water (ironic for someone who likes Cabo so much… but did you see the other part about the great lakes???) and I think I’m in need of full sun too.

The changing of the seasons, in every season, is something I actually look forward to. I like the variation, life and death and new life, year after year after year. I am learning, however, that those months characterized by less sun here in the northern climes are probably always going to be a little harder for me. Turns out, my soul is more important to me than shoes, though. And even the shoes, despite their unwearability on account of the stupid velcro are still pretty cute and I’ll probably go out looking for another pair just like them… with something a little more secure as the closure. I’m stuck dealing with the soul velcro, so to speak, but even more than the dang shoes, it’s worth it. Worth it to fight. Worth it to stop walking every now and again to secure it.

T is for Truth and t is for truth.

Recurring Themes, Seriously, , , , , , , , , , , , ,

My drumline instructor when I was a freshman in high school once told us a really terrible joke about tuning piccolos (the extremely high-pitched mini-flute-like instrument absolutely essential to any John Philip Sousa march). I don’t remember it exactly, but it went something like this…

Q: How do you tune two piccolos?

A: Shoot one of them.

I told you it was horrible.

Yet, I was reminded of that punch line when I found myself facing this similarly challenging question yesterday afternoon…

Q: How do you get two biostatisticians to agree on an analytical approach?

The punch line has got to be similar.

Statisticians never agree.

Never.

Except there’s a difference. Bring a person with perfect pitch into the room (perfect pitch is an amazing and rare gift– I’m pretty sure Kevin from the LHS drumline, the guy who we called upon to tune our timpanis, had it. Absolutely amazing.) and you’ll be able to figure out which piccolo is hitting the right note and which one needs to adjust. That’s a Truth. In contrast, in biostatistics, there are many different ways to come to an answer and determining which way is the right way is really just a matter of opinion. Each approach may seem like an obvious Truth to the statistician that espouses it, yet both approaches are actually truths.

See the difference? The big T versus the little?

There are, in my mind, two different kinds of truth: Truth and truth. As a scientist, my tendency is to think of them in terms of a law (Truth) and a theory (truth). A Truth is a fact, a thing that is undeniable. Gravity is a law, it’s a fact, it’s a Truth. That gravity has an abnormally strong effect on me, thus explaining my general tendency toward clumsiness? That’s a truth. The truth can be different for you and me. The Truth cannot.

Like the word innocence for the letter I, the notion of truth keeps popping up over and over again in my life just as I hit the letter T. So it must be the word. (It was going to be Toot Sweets and Truly Scrumptious because I love Chitty Chitty Bang Bang, but Truth/truth gets a little deeper– so let’s go with that instead.)

Things that can feel very Truthy for me might not be even close for you. Take the Oxford comma, for example. (Are you into nerdy things like grammar? If so, I highly recommend you click on that Oxford comma link– it’s an amazing infographic entitled “The Oxford comma: Decried, defended, and debated” from Holy Kaw and I love it!) I have strong, personal feelings about the Oxford comma and will use it always, but there are two different opinions on that point and Oxford comma yes or no– either way is technically correct. Therefore, your own personal thoughts about the Oxford comma are just a truth. Not a Truth.

QED. (I was proving to you that the notions of law and theory, Truth and truth, don’t always have to be applied in a purely scientific capacity. I should have made that clearer from the get go. But now I’ve proven it and I’m not going back to re-write.)

I’m currently listening to the Audible version of the second book in the Divergent series. So intense! So good so far! Most recently, Tris and Four (pardon me, Tobias) were interrogated by the Candor faction (which for those of you not in the know, values honesty above all else) under truth serum. They were unable to lie and both were forced to admit some hard truths– big, important, sensitive, and personal truths. After each confession, the interrogator would be joined by  everyone in the group for a chorus of the phrase “Thank you for your honesty.”

I liked that. That’s a good response to a personal truth, whether you agree or not. Whether it’s Truth or not. It’s respectful and neutral. Granted, it would probably be an awkward conversational moment if the exact phrase was actually used in real life (e.g. You: “My pants are too tight.” Me: “Thank you for your honesty.”), but I do think the notion of appreciating someone else’s honesty is a good one. A very good one. (Perhaps a better way to neutrally appreciate such a statement would be, “I’m sorry you feel uncomfortable.” But I’m an apologizer… so… you could probably come up with something better. You get the idea, anyway.)

As I thought about the concept of Truth vs. truth and my truth vs. your truth, I realized how important it is for me to always remember that there is a difference. It’s important from the perspective of sharing my truth and accepting the truth of others.

When I share my truths, I have to phrase them as such– I need to start with a phrase that lets the other person know that this is what I believe to be true, but that it doesn’t have to be their truth, because it’s not necessarily the Truth, no matter how correct it feels to me. Similarly, when someone shares their truth with me, even if they are certain it is the Truth, I have to remember that it’s ok to have a difference of opinion.

There are a lot of things we talk about where this distinction is important.

Robin Williams is gone and he took his own life. That is the Truth.

Why he did it, what it means, what can be done in the wake of this tragedy– we all have a different truth about that. I don’t know anyone in my generation who isn’t touched by this tragedy… and that it is a tragedy, I think that is a Truth.

Depression is like that though. It’s divisive because that things are bad feels so incredibly true for the person who suffers, regardless of how things look on the outside. Of how things Truly are. You cannot tell a person at the bottom of that pit that the pit doesn’t exist because to them, it is all they can see. The successful career and the happy appearance are True, but depression is a truth it’s hard to see as anything less than Truth for the sufferer. I promise.

…

Nearly two years ago now, Sister Doctor was rotating through psychiatry as part of her third year medical school rotations. During that rotation, she came into contact with an elderly woman who was hospitalized for severe depression and suicidal ideation. She did not want to live. The woman touched Sister Doctor pretty profoundly, whether Sister Doctor realized it or not, and the way she spoke to me about it after the encounter struck me as particularly beautiful.

The woman had tried, in vain, to explain to someone who had never experienced depression herself what it was like and ended with a statement acknowledging the fact that without personal experience, it is not something that can be understood.

I can’t be certain, but I think that most medical students, most people for that matter, would have launched into an explanation of biochemistry and book learning and medical diagnostic criteria that would effectively minimize their own feelings of inadequacy.

Sister Doctor did not.

What she said to me was that she really wished she could spend an hour inside that woman’s head… to really know what it felt like, because the woman was right, she had no idea what depression felt like and couldn’t relate.

Wow.

What if all doctors thought that way? What if all people thought that way? What if when someone shared a truth with us that doesn’t match our own truth we said, “I wish I could understand what it is like to be you in this moment…” “Thank you for your honesty…” ???

Depression is like that.

Chronic, undiagnosable  illnesses are like that.

The truth, with a little t, is like that.