The things you don’t see on Facebook…

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As I write this, I’m sitting on the chaise end of an enormous comfy couch located in a gorgeous penthouse suite at the tippy top of the Hilton Hawaiian Village Lagoon Tower in Honolulu, Hawaii. I have a view of Diamondhead Crater and Waikiki Beach through the gauzy balcony curtains. This moment is 100% Facebook-able. Not unlike the large number of other Facebook-able and Instagram-worthy moments I’ve posted since departing the chilly Wisconsin fall in favor of the sandy beaches, aqua ocean, and tropical climes of Oahu early Saturday morning.

intro pic

I posted about the upgrade to first class on the 6+ hour flight en route from Salt Lake City to Honolulu that Seth gifted to me and the mai tai I was offered the second I sat down. It was super sweet of Seth and definitely a cush way to travel, I think I captured that… but I didn’t describe the anxiety the began to plague me the second we left our house on Friday evening. I didn’t describe the panic it turned into before we boarded that plane in SLC. The heartbeat that wouldn’t slow down, the breaths that became increasingly difficult to take, the feeling that something was stuck in my throat and sitting on my chest, the tears that wouldn’t stop coming, over and over again for almost the entire 6+ hours.

This is what anxiety looks like. (On me, in that particular moment.) Not exactly a new profile picture.
This is what anxiety looks like. (On me, in that particular moment.) Not exactly a new profile picture.

We met our friends in the airport — I quickly confessed my unwavering anxiety to Melissa and she rapidly and genuinely assured me that she loves me no matter what. I believed her. Mostly. But not entirely, because anxiety…

But then again, gratitude, you know? And this place, this vacation, these friends — so much gratitude. And we were in Hawaii, and I was wearing a beautiful lei, and I posted a (tired) selfie with the words “Aloha!” and a smattering of super fitting emoji. I posted a snapshot of our view and showed everyone the perfection that surrounded me. And it was good.

aloha

Chris came to join us from his hustle bustle, fancy wedding-in-the-mountains lifestyle on Sunday afternoon and he made dinner plans for us at Roy’s Waikiki. (Have you been there? This sentence, how is this my life?) As we piled into the car and headed down the beach, I felt the panic rise again. There were tears burning the back of my eyes and a tightness in my chest I couldn’t swallow away. There was no reason, yet over pre-dinner drinks Halekulani, Seth put a hand on my back and asked me if I was ok and I lost it. Lost it and couldn’t get it back. There was this picture that Chris took, and it’s nice. But I can see the white knuckle grip my fingers have on my own arms, the strained smile, the panic…

hanekulani

Dinner was lovely. I had a perfectly cooked local butterfish in a deliciously complex orange sauce followed by a few bites of chocolate souffle perfection for dessert. That’s all Facebook-worthy, Twitter-perfect… but the moments in the fancy bathroom spent messaging my mental illness guru (<3 <3 <3) and fighting tears and the constriction in my chest at the table… not those. Those (plus Seth’s, shall we say, insistent urging) were enough to convince me to message my psychiatric nurse practitioner about perhaps calling something in for me — a temporary solution to get me through the flights home before I get back to Wisconsin and into the clinic.

I was so hesitant to take the drugs. Depression is my thing. Not anxiety. This is not me. Was not me? And the Hawaiian restrictions on prescriptions for anxiolytic drugs that wouldn’t allow the local pharmacy to fill the Rx faxed in by my provider (I get it though, Hawaii, I really do — and I’m totally not upset) and the necessity to seek out a walk-in clinic and explain my situation all over again nearly did me in. Fortunately, my sweet husband and amazing friends didn’t give up on me and, with their encouragement, I did what I needed to do to get some help. I went to some weird places and walked some strange roads through Honolulu on Tuesday, but met the “helpers” that Mr. Rogers (the elderly, sweater-wearing, shoe-changing variety) tells us about and got the help that I needed for now.

It was on Monday, as I pondered the absolute absurdity of my goings-on that I thought about all that I was showing and all that I wasn’t and how utterly ridiculous it is for me to know with absolute certainty that that is true about myself, but to constantly and consistently doubt the same must-be-fact about others. We don’t post selfies in the lobby of the Japanese-only (except apparently not because they treated me) walk-in clinic we stumble into while in Hawaii. We don’t become facebook friends with the also Japanese MA who hugged me when I told her I had a miscarriage a few weeks ago and then told me about her own journey through IVF with no success; the woman with whom I shared a surprisingly sweet moment of sadness and mutual understanding. We don’t chat about the kind Walgreens clerk who explained Hawaiian prescription laws and then discussed our mutual love of the Packers and cheese with me while waiting for my sketchy almost-in-Japanese-but-from-a-Hawaii-licensed-prescriber prescription for valium to be filled. Nope. We post the leis and the luaus and the sunset and the smiles. Because those are the things that belong on Facebook, Instagram, Twitter, and whatever the kids are using these days.

But then again… Tuesday night happened too. And while some of it made it to Facebook, the most amazing bits are relegated forever to my memory because, well:

black sky

iPhones, at least in my hands, don’t take pictures of stars. Facebook can’t really capture the beauty of Melissa’s face when she looked up and nearly screamed, completely giddy from altitude and excitement, “is that THE MILK from the Milky Way?!! Am I seeing the milk???” You guys… it was the milk. The faint light of millions and billions of stars in our beautiful and enormous and amazing and mind boggling galaxy. The milk.

But not just that. It was the whole trip. The warm sun and strong breeze on the ground in Kona while we ate lunch overlooking a little harbor. The stop at the little abandoned sheep station for dinner on our way up. The stars, the stars, the stars. I saw Cassiopeia and followed her arrow to the north star. We saw a dusty little nebula, a star cluster that might as well have been fluorescently stained cells in a dish (the feeling that I had seen that before, wow), and even a glimmer of the “nearby” spiral andromeda galaxy.

The next day, we came back to Oahu early and then headed to the Polynesian Cultural Center as Super Ambassadors where our sweet guide Danica took us from island to island where we heard music and helped to make it, watched beautiful dances and shook our hips as best we could when they taught us how. The Maori gave me goosebumps, the Samoans made me laugh hysterically, and the Ha Breath of Life show brought tears to my eyes in a truly good way.

music in fiji

I took pictures in all those places, at all those times. Facebook-worthy, Instagram-perfect pictures — but there’s no way to capture it all. I can show you the pictures, but I can’t show you the best parts. I can’t describe to you how beautiful my friend was when she saw that milk, how happy my husband was to have finally made it to the top of Mauna Kea. There’s no way to adequately explain the feelings, the real meat of the experience.

And that’s really my point I think. I can post things about my miscarriage, my grief over the loss of our first baby, and the consequent (I think) anxiety and panic I’m experiencing. But even if you know, even if you have experienced it yourself, you haven’t had my experience and I haven’t had yours, so there’s a whole depth there, beyond social media and even the words, words, words I share here, that we really can’t cross. Similarly, you have had beautiful experiences — weddings days and amazing vacations, deep and important friendships and tiny perfect moments — and so have I, but again, there’s a depth of experience that make these things so personal, so uniquely our own, that no amount of photo sharing or photo shopping can ever really capture or convey what it meant to be there, to have lived it.

But it can give us a clue — a clue that something is worth digging in over. Several years ago, when a friend of mind posted something hinting at depression, I messaged her. And a couple days ago, when I found myself in that fancy bathroom, we had another nuanced and deep conversation, despite the panic, that was exactly what I needed in that moment. Similarly, Aunt Becky, PhD, saw our pictures of the sunset from Mauna Kea on the Big Island and was reminded of her own sunrise trip to the top of Maui’s Haleakala and shared her own beautiful photos, reminders of another beautiful experience, with me.

Life is so complicated and messy, yet it sets up up for so many moments that are beautiful beyond words. Sometimes we manage to capture some of that beauty and little snapshots of frustration or grief. It’s not the whole truth, though. It can’t be. We can only live what’s real and show the highlight reel. There’s no other way to go about it. And, for me, it’s so important to remember that the beautiful, picture perfect moments are only a very small fraction of the story, but that all of the experience matters.

 

On Monday night I was in a complete state (as I imagine a genteel southern woman would delicately call the messy ball of anxiety I had become). I went up to our room, took a sleeping pill, and came back down to say goodnight. But my sweet friend Melissa saved me from myself. We went out onto that beautiful penthouse balcony and I sobbed about my miscarriage, the struggle with infertility, the unfairness of it all… the pain, the grief, the self-pity. I unloaded it all. It was not pretty. And then I couldn’t stop apologizing because one of my biggest fears before we left was being the ruiner of vacation — I couldn’t bare the thought of ruining this beautiful trip for people I love so much. Instead, my friend said to me, with the most Melissa-y quiet confidence the likes of which I have never seen in another person, that she was sure we would look back on this trip someday and be grateful for this moment. This moment that felt so ugly and pathetic, yet truly was deepening and strengthening for our friendship. She talked about how well we’ve walked together through the highest of highs (our vacation dossier is ridiculous) and how this was truly our first opportunity to run our friendship through the lowest of lows. She’s right, of course. And those are the things you would never see on Facebook.

A Harry Potter Perspective on Miscarriage. (Yes, even miscarriage.)

Pregnancy or Lack Thereof, ,

In my last post before the Worst Thing happened, the one where I talked about being scared about the Worst Thing (EFF, right?), I ended with an HP quote from Hagrid, the loveable half-giant groundskeeper of Hogwarts. I said:

It’s funny because I thought that when the IVF was over, we’d have an answer and I’d feel resolved in some way. But I don’t. Not at all. Excited and happy, of course, but definitely not resolved. And what I probably need most of all is to circle back to that lovely prayer of relinquishment — the one that, with both hope and gratitude, accepts what is to be. Or, as Hagrid says, “What’s comin’ will come, an’ we’ll meet it when it does.”

It made sense when I said it. It made me feel like a confident person, ready to handle anything, good or bad, with a bit of grace.

Grace…

HA!

I’m devastated and angry and broken and oh so messy — always on the brink of a sob, full on water works with snot and ugly crying and ohmygod why does my mouth do that. Swollen lips and puffy eyes. Kleenexes and kleenexes and kleenexes. There is not a single thing that is graceful or dignified, stoic or brave about it.

But I finished HP very, very early on Friday morning (I fought the sleeping pills — which are the only thing keeping me alive, I believe — until 1:40 in the morning, just to see sweet Albus Severus get on the Hogwarts Express). And it was fitting that I finish it now, the end of the series coinciding with the end of… everything. The IVF, the pregnancy, all of it. Interestingly, though, the thing that meant the most to me this time around wasn’t the defeat of Voldemort, the duel between Mrs. Weasley and Bellatrix Lestrange (“Not my daughter, you bitch!”), or Neville’s moment of glory. I still felt sad over poor Fred and overjoyed at Ron + Hermione. Grateful to Narcissa and shocked, pleased, amazed over Snape. But the thing that meant the most this time around… it was Hagrid’s grief over Harry’s lifeless body. His absolute devastation in that moment, the messy, sloppy tears and absolute wretchedness. It led me back to remember the other moments that Hagrid wept, over Buckbeak (whew) and Aragog (also whew?). Nearly lost it when he discussed his dear, departed dad.

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The very same Hagrid who said with confidence implying grace and stoicism: “What’s comin’ will come, an’ we’ll meet it when it does.” And I suddenly felt just a little less stupid about all the things I’d said. Have ever said. The things I told my therapist made me a complete and total idiot, full of shit, writing and writing and writing about things that made absolutely no sense and that I didn’t actually believe when it came right down to it. (He said that we probably didn’t need to discuss that quite yet, but that doesn’t mean I haven’t obsessed anyway.) Because what was coming did come, and I have met it as I am. Having said all the things I said and wrote all the things I wrote. I never did promise to meet it with grace, just to meet it — because what, exactly, does grace look like when your baby dies??? Quite frankly, I reacted just like Hagrid would have. A curly-haired, creature-loving, half-giantess in my own right. Snot and tears and full on grief — grief because I loved. Like Hagrid.

 

But, sadly, also like Voldemort. Because when my baby died, a piece of my soul went with her. My grief is like Slytherin’s locket turned horcrux, hanging heavy around my neck. Making me think crazy, twisted, untrue thoughts — all the reasons it’s my fault, all the reasons I deserve to hurt, to have lost, to not be a mom. It drove Ron mad, and he was magical… what chance do I have?

But then again, Ron found his way back. The strength to try again. I guess I have to believe that I will too because despite the fantasy, the magic, the make believe… is there anything truer than Harry Potter? Good and evil, yet nuanced — “the world isn’t split into good people and Death Eaters. We’ve all got both light and dark inside us.” And outside us too. We all spend time basking in the brightest light and plunged into the deepest dark. Harry, Hermione, and Ron… Ginny, Luna, and Neville… Hagrid and sweet Dobbie, even Kreacher… they can teach us so much about that.

I started re-reading the series from the beginning on the day I started injecting the IVF drugs, in the hopes of producing a baby who loved it too. Of imbuing my eggs with a sense of magic. Of passing that on to my little one.

But she didn’t need it. I did.

It’s fiction. Children’s stories. But it’s parables too. Messages and lessons and thoughts worth thinking about, characters worth learning from. When nothing else helps, I’m glad I had it. Have it. Magic.

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Normal.

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I had surgery last Wednesday. I woke up heart broken and body destroyed.

I’ve spent a lot of my time crying since then. And by Sunday, all the crying started to make me feel panicky — shouldn’t things be getting easier? Why does the pain keep coming? Wave after wave, worse and worse.

I made an emergency appointment with my therapist on Tuesday morning. I told him that I couldn’t stop the thoughts and that when the thoughts came I couldn’t stop the pain. The tears. The torture.

He reminded me that I’m grieving. He told me that this is normal.

I had a follow-up appointment from my surgery with my ob/gyn today. I told her about all the bleeding that comes and goes, about my puffy, swollen (think over-risen bread in a loaf pan) ankles and feet. Everything hurts. She reminded me that I just had surgery. That my ovaries are still hyperstimulated. She told me that this is normal.

I explained it all to Seth over gchat and ended with “I hate this new version of ‘normal.'” It was the truest thing I ever typed.

Normal has never been this hard. Normal has never felt so broken.

 

One of the weirdest things about this new normal is the lack of intense focus, the goal in mind. We’ve tried for years (YEARS) to get pregnant. Appointments, pills, ultrasounds, procedures, injections, the works. Since April, when we started gearing up for IVF, the intensity has been even greater. All eyes on the prize. And we won the prize. We held it in our hands, so briefly. Even after winning, so to speak, the focus didn’t lessen — 9 months ahead to parent-dom and a baby on the way. The goals changed, but they were still intense… eat not to vomit, avoid the smells, schedule the appointments, do all the things. Until in one awful moment, there was no longer any goal at all.

Everything stopped.

And this weird place, broken body and soul, became my new normal.

 

My therapist suggested on Tuesday that maybe now I just focus on healing — my body and my mind. It’s hard to say ok to that, honestly. Because I don’t want to heal, I want my baby back, to go back to two weeks ago when that little heart was still beating inside me. But one of those things is possible and the other is not.

So to heal is the only way. The only focus worth having.

Healing has to become my new normal. Maybe I can hate that less?

 

Admittedly, healing definitely starts from without in this instance. I can’t tell you… can’t even begin to express… how much love and support Seth and I have felt in this difficult (absolute crap) time. My friend Margaret said to me, “I pray that you can look out the window at a beautiful day (as I’m doing now) and be able to thank God for all the amazing blessings that you HAVE received, knowing that there will be many more to come.” And the blessings that we HAVE received are unbelievable and generous and innumerable and amazing. We have so much love in our lives, we have each other, we have our pup, our families, our friends, our jobs, our health, and so many other really, really Good Things. Even the weather, which actually has been lovely, like Margaret said.

We are lucky in a lot of ways. And no one is lucky in all the ways.

 

On Saturday evening, my dad and I sat on a boardwalk on Mackinac Island watching the sunset over the bridge.

Mackinac Sunset

Admittedly, my faith has been shaken and my beef with the almighty feels kind of big right now, but my dad assured me that someday, I will find Meaning in this. Even this. I think he’s probably right. I can’t look too hard for it at the moment. I’m still too sad, too angry, confused and upset and… as I’ve said a million times, broken, to find it. To even know where to start looking. But maybe that meaning is what comes with healing. And eventually incorporation of that meaning into my life can become my normal. That would probably be a better place to be. Another new normal, a little better than the last.

And then, The Worst Thing happened.

Pregnancy or Lack Thereof

We saw our baby yesterday — big head and little arms, a perfect little t-rex. It actually looked like a baby. And I wanted to be so happy, but something was missing. That rapid blip blip blip that had been so obvious the first time we saw her. I didn’t want to ask; I couldn’t bare for it to be real. But I also couldn’t stand the silence.

“There’s no heartbeat, is there?”

“No. I’ve been looking. I’m so sorry.”

And in that moment, our baby was gone. Her life was over before it even started and my own heart was obliterated.

Shattered and destroyed.

All the air was gone and the tears came so fast. So steady. So constantly. Even still, right now.

I know it’s not my fault, but I’m still so so so sorry. So sad. I feel terrible that after struggling for years with infertility, Generations gave us this most precious gift and I couldn’t carry it. That I failed to be a mom and to give Seth the chance to be a dad.

The cruelest part is that she’s still there, inside of me. That my body still feels her in the ways that have always been known only to me — the nausea and the fatigue and the incredibly tender and swollen breasts. The little bloat to my belly, the uncomfortable tightness of my pants. My body doesn’t understand yet. Only my heart.

My heart feels it acutely — the pregnancy is over, our baby is gone, and life has once again careened off the rails. We have no plans right now except to continue breathing in and breathing out and to let the tears come when they do. I’ll probably spend some time today boxing up the Painful Things, the gifts and maternity clothes and other stuff that suddenly seems like useless, premature, wishful thinking. All the while, hoping that time will pass and work its magic as only time can work on pain.

A Jessie-Spano-on-pills-style pregnancy.

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I’ve been at such a loss for words. (You: But you always have words, way too many words…) I know, I know. The words are in my head… but they won’t move to my fingers and I can’t get them on the page. Blogging feels impossible. Because what do you write about when you just wrote the biggest thing you’ve ever written? Where do you even start?

And, more importantly, what if you have to take it back?

I don’t, thankfully. But I am so scared that I will. And that makes me scared to say anything at all. Lame. My husband is rather fond of saying, “like water off a duck’s back, babes…” He thinks it’s somehow not worth worrying about something you cannot control. Pppsshhh. I am so not a duck.

Yesterday, I came across a lovely description of my weirdness courtesy of Anne Lamott (living proof that The Hard can make you so so Good):

“My six-year-old associate, who sleeps down the hall about thirty feet away with both our doors wide open, wakes up on many mornings and predicts, ‘This might be the best day ever!’

Then, in the dead of night, a tiny voice calls out to me, ‘Nana, will you ever get sick or die?’ Then he cries at the very thought. He terrorizes himself.

I think this says it all.

If you are alive, conscious, and sensitive, which is to say, human, you’re going to have incredible joy and terror this side of eternity. It’s Life 101, life on life’s terms, not on ours, all these things – fear, joy, grace, mess, isolation, communion, all mixed up together.

I hate this more than I can say. I don’t like everything to touch.”

Mmmmm hmmmmm. (Nods enthusiastically.) Joy and terror, always touching. Like the world’s most poorly crafted dinner plate, everything leaking it’s juices all over everything else. Life. Ugh.

The only person who has ever said it better? Why, Bayside High’s own Jessie Spano of course — you know the very special episode. When poor, over-committed Jessie starts taking caffeine pills just to keep up with it all.

  

“I’m so excited! I’m so excited!! I’m so… scared!”

That is exactly it. I’m so dang excited I can barely stand it. But I’m SO SCARED. And as such, I’m trying way too hard to temper my excitement… just in cases (not a typo, watch Love Actually)… it’s no good.

Honestly, it’s no way to live. Yes, the bad, the worst, the unimaginable can happen. It has been happening for over three years. Month after month of disappointment, bad news, procedures and pills and injections without success. But in this moment, the good, the best, the unimaginable in a completely different way has happened. We’re pregnant. Pregnant!! And right now, we have a baby on the way. Incredible joy. Terror can always show up. But it’s not here now and worrying about it, collapsing into my real world Zack Morris, doesn’t help.

Fortunately, I ran back into the house on my way to work last Friday morning to puke up my breakfast. I had chalked everything else up to the progesterone injections (seriously guys, my backside is like swiss cheese — injections every day until 9/23) or elaborate psychosomatic responses to knowing/thinking I was pregnant (my brain can be such a powerful little beast), but you can’t just imagine puking. That’s real! I’d been feeling so good that I’d even peed on another stupid stick (positive!) last Monday. Kind of pathetic.

It’s just… the FEAR. I can’t escape it! I honestly don’t know how and I feel like I’m skipping from rock to rock across a 40 week wide river at the moment, desperately hoping I make it to the other side. Always looking ahead to the next rock, barely believing I made it across the last. Blood HCG to peeing on a stick to puking in a toilet bowl and ultrasound on Thursday. At some point I’ll have to stop, or I really will end up like poor, stressed out Jessie Spano. I’m just no good at being a duck.

It’s funny because I thought that when the IVF was over, we’d have an answer and I’d feel resolved in some way. But I don’t. Not at all. Excited and happy, of course, but definitely not resolved. And what I probably need most of all is to circle back to that lovely prayer of relinquishment — the one that, with both hope and gratitude, accepts what is to be. Or, as Hagrid says, “What’s comin’ will come, an’ we’ll meet it when it does.” (I just finished The Goblet of Fire last week. Oh my goodness. Onto the Order of the Phoenix — no fake book interlude this time, just straight through the magical goodness.)

Because why shouldn’t Harry Potter be part of my spiritual solution? (Which reminds me to say that dang, Hermione’s hair is so much better in the books than in the movies. I mean, lots of love to the brilliant Emma Watson, but her hair really should have been a lot bushier in the movies, don’t you think? Perhaps I’ll spend some time worrying about that instead for a bit.)

It’s a go.

Uncategorized

I’ve always been a really good test taker — it’s just a skill I have.

Today, I blew my test out of the water.

Needed to pass: a 50% increase in my HCG levels.

My score? 84% increase!! Woot woot!

On Wednesday, my serum levels were 122 mIU/ml… today 225 mIU/ml. Yes. Yes yes yes.

Definitely, definitely pregnant.

Oh, thank goodness!

 

My niece Emma’s thoughts on the topic: “Yeth!!!!” (With double fist pump.)

  
Me too, baby girl!!!

 

PS: YOU GUYS! Why is everyone SO DANG NICE?! I’m so weepy it’s not even funny… except kind of it is. Thanks so much for the gobs and gobs of love and buckets of support. I can’t thank you enough, really, truly, honestly.

Positive. Positive? Positive!!

Pregnancy or Lack Thereof, ,

I’m sorry for not writing yesterday… I know I said I would and people were waiting… it’s just… this isn’t the post I expected to write.

Remember this little ball of cells?

ball of cells cropped

Well, s/he appears to have decided to stick around.

!!!!!!!!!!!

We had a positive pregnancy test yesterday.

A positive.

So positive that while we still have to test again tomorrow to make sure my HCG levels are increasing, when I asked the nurse what the chances of a false positive were, her reply was, “You’re definitely pregnant.”

She had me re-order the progesterone and gave me all the pregnancy instructions.

(She wouldn’t have done that if it weren’t really truly true, would she?)

Shock. Happy shock. But shock.

And as happy as I am, I still find myself wary. Very wary. Wery wery wary. Seth and I have to decided to believe it fully after Friday morning’s test… but there’s definitely a big fat piece of us that I think believes even now.

We’re so happy. Honestly. Crazy, ridiculously, over-the-moon happy. But then there’s this nagging bit of guilt — how did we get so lucky when our odds were so low? And who have I left behind in the trenches of infertility? And the thought of making someone feel bad because of our pregnancy… because I know that feeling. I know it so so so well. The heartache. And I don’t want that for anyone. Ever.

Also the fear. Because not all pregnancies result in babies. How tenuous is that little ball of cells in there — has it latched on well? Are we due to have the rug torn out from underneath our feet somewhere else down the line? Like maybe even tomorrow when we do the confirmatory test?

Scared and guilty. Worried and wary. But so undeniably, crazy, ecstatically, furiously (shout out to Jenny Lawson, The Bloggess, for that adjective) happy.

So I wasn’t sure what to say, but here was my little page-a-day calendar to the rescue once again:

Happiness is only real when shared. - Jon Krakauer (Artist: Becca Cahan)
Happiness is only real when shared. – Jon Krakauer (Artist: Becca Cahan)

(Also, self-done, Pinterest-inspired, sparkle gradient manicure — like a party on my nails and the color is called “marshmallow” so I’m in love with it.)

 

So there’s the happy news! (Probable) IVF success… can you believe it?

 

The caveat, of course, is the confirmation tomorrow. Who knows? Maybe the HCG won’t have risen 50% and the “definitely positive” we got form the nurse wasn’t actually so definite. It’s ok to continue to be reserved a bit, I think. I’ll let you know for sure… promise.

Aunt Becky, PhD, and the Prayer of Relinquishment

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At the end of the race, there are almost always bananas.

At the end of the rainbow, there is supposed to be a pot of gold.

At the end of a journey, a destination.

 

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And at the end of the five stages of grief, there lies acceptance.

I don’t know that I’ve ever grieved heartily and with enough awareness as an adult to really notice any given stage of grief. Not until yesterday… when in less than 24 hours I managed to go from stage 1 (blissful denial) to rapid vacillation between stages 2, 3, and 4 in a torrent of tears and snot (so much snot) before I finally settled into a puffy-eyed, rosy lipped (my lips get very bright pink when I cry a lot) depression.

Puffy-eyed bedtime and only the Chamber of Secrets could provide me solace.
Puffy-eyed bedtime and only the Chamber of Secrets could provide me solace.

 

So, what happened, exactly? We’ll do it stage by stage.

1. Denial

I had a lovely time on Sunday night, the night before the embryo transfer. My cousin-in-law Megan had her second annual Take Steps for Crohn’s and Colitis fundraiser at UPaint and Party in Wausau. Almost everyone painted a gorgeous picture of a lovely little bird silhouetted against a bright sky flying from it’s cage. My painting somehow got a dementor in it, but I still had a blast. It was nothing but fun and I was in good spirits about Monday’s transfer. Yes, I only had three embryos, but it could be great! That was three chances — making for a potential family of five humans and my sweet Curly girl to boot. I was good.

The dementor just kind of happened...
The dementor just kind of happened…

Even Monday morning, though nervous and stressed about heading out the door a bit late, I was still making The Jerk-based jokes with my family.

Courtesy of my Shabsky.
Courtesy of my Shabsky.

And that’s all I need…

2. Anger

We arrived in Madison a mere 4 minutes late for our scheduled appointment. Big thanks to the state of Wisconsin for upping our speed limits to 70 mph — big help yesterday. The nurse brought us back to the procedure area, same as before, and began to collect vitals, provide information, prep us with our gowns and caps and booties and all that… and I noticed that all the while, she kept saying “the embryo.” Part of me assumed it was because they were planning to just transfer one, which was always the goal. A much darker part of me knew what it really meant though.

There was only one embryo left. Two of the three we had, the three I had been banking on, had stopped developing. Just stopped. We were going to transfer only one because we had only one.

The one. I'm sure someday I'll make Highlander jokes about this. Too soon.
The one. I’m sure someday I’ll make Highlander jokes about this. Too soon.

And that one? Not even ideal. Not sure on the details… and this image means pretty much nothing to me (no wonder they call it a ball of cells, eh?) so I can’t exactly glean anything from that, but something about it not being as developed as it should have been — an early blast instead of a mature/late/something one. I don’t know. It was hard to hear the embryologist over the buzzing in my ears that always comes when I start trying to hold back tears.

I was so unbelievably, inconsolably (even by Valium) sad. And angry. ONE?!?! After ALL THAT?! After all we had been through, all the thousands of dollars and hundreds of injections and ultrasounds and trips and tears and everything… just one. One shot. One sub-par shot.

But we did SO much. We’ve been through SO FREAKING MUCH. And so many people who do NOTHING, absolutely NOTHING, but get it on once or twice have babies all the dang time. ALL THE TIME. Why are they special? Why am I not? Why are they so obnoxiously #blessed and is #cursed even a thing?! Because I obviously am. What’s wrong with me that even with thousands and thousands of dollars of medical intervention this is still the best I can do??? One.

And if that one doesn’t work? There’s nothing in the freezer to try again. Nothing. We have to start over from zero. Physically, emotionally, financially from zero. Do it alll over again. And I know I’m too close, and I know this isn’t where we are yet, but I can’t. I shouldn’t have to! I don’t want to!! It’s not FAIR!!! (Which is truly the worst thing you can say as an adult because by this point in my life I am well aware that life is not fair and nobody every said it would be.)

3. Bargaining

But it only takes one. One is enough. One is better than zero and I’ve prayed and hoped and begged and done everything right. Everything I could do. I would do anything — hasn’t what I’ve done so far proven that? Wouldn’t we be good parents? Don’t we deserve a family?

Even just this weekend, the priest talked about the little boy who made a miracle happen by bringing Jesus his meager loaves and fishes. I’ve brought him mine, haven’t I? With everything I have done, all that I’ve been through… it’s time for our miracle now, isn’t it?

And there it is… the little embryo between the two air bubbles.

embryo ultrasound labeled

Or so they tell me. I wouldn’t know. As far as I’m concerned, this actually could be a print out of an ultrasound from a cow and I’d be none the wiser. But that has to be good, right? That you can see where it is? Inside me? Please, I’ll do anything to keep it there, to make it grow, to let it be life.

4. Depression

But then again, it really doesn’t matter anyway. It’s out of my hands and come next Wednesday, when we can finally test, this will all be over. Yes, pregnancy is a possibility. But really? If after all that, we were left with one embryo. Just the one, just hanging in there, is it really very likely that we’ll be pregnant at all? I have lost my hopefulness, my optimism. The best of it, the stuff on the inside. I have to keep saying to everyone, “Oh yes! It’s very exciting! We could be pregnant right now– not too much longer ’til we find out! Keeping our fingers crossed!!” When really, I know otherwise. I know, you know? And the best news of all — my attitude will not change anything and if ONE MORE MOTHER EFFING PERSON TELLS ME OTHERWISE I AM GOING TO FREAKING LOSE IT. (Oops… that bit might have been anger again.) You cannot visualize or positive energy or pray or wish or hope yourself into pregnancy. It’s biology. And my biology hasn’t really felt like cooperating so far. It is what it is (sorry, Aimee — I know you hate that phrase, but isn’t it the best depressive phrase kind of ever?) and I am where I am and what’s done is done and it’ll all be over soon.

…

Back and forth and back and forth, sometimes anger, sometimes bargaining, sometimes depression over a frightening number of cycles since yesterday afternoon. And then sometime this morning, as I chatted with my friend Marie (Seth, if we ever do have a baby, her middle name (or even his middle name, to be honest) is going to have to be Marie — fair warning) about normal things, the things we chat about all the time, and I felt my funk start to lift just a bit I started thinking about what acceptance might actually mean. And I realized that Seth’s Aunt Becky had kind of already set me up for it a while ago, believe it or not. Probably on purpose too. She’s super wise and all knowing like that. Like Dumbledore. A doctor even, the good kind, PhD-style like me. Her PhD isn’t actually in theology, although as a self-taught theologian she’s quite impressive, if I do say so myself.

Aunt Becky is on the right -- she says cool things like "academic wonks," is the homeliest in a good way person I know, AND throws groundbreaking bachelorette parties for her colleagues.
Aunt Becky is on the right — she says cool things like “academic wonks,” is the homeliest-in-a-good-way person I know, AND throws groundbreaking bachelorette parties for her colleagues.

A few weeks back she sent me a link to this article about the prayer of relinquishment:

The Prayer of Relinquishment by Catherine Marshall

Maybe I’m really late to the game and this is old news for everybody else, but in this moment, I’m so crazy grateful to Aunt Becky, PhD, for sharing it with me and I can’t recommend reading the whole thing enough if you’re in any capacity inclined toward spirituality. It’s so good.

This is the crux of it all, at least to me and right now:

“…it says, ‘This is my situation at the moment. I’ll face the reality of it. But I’ll also accept willingly whatever a loving Father sends.’ Acceptance, therefore, never slams the door on hope.

Yet even with hope our relinquishment must be the real thing, because this giving up of self-will is the hardest thing we human beings are ever called on to do.”

5. Acceptance

So as Catherine Marshall says Mrs. Nathaniel Hawthorne said once upon a time… why should I doubt the goodness of God?

I wear my bracelet all the time, the one that says “Always.” as a reminder that God is good. Always. No matter what. Why would this moment be any different? Pregnant or not, my life will go on. Pregnant or not, Seth and I will still love each other and we’re really lucky to have that. Pregnant or not, our little family will continue to flourish and decide what to do from there. All I can do right now is accept what is to come, relinquish the notion that I have any control over it, and carry on for the next several days until we have an actual answer to which I can react.

Yes, it’s hard. So so so hard. But as Melissa told me last night, even Jesus got angry. Why shouldn’t I? God gave me all these emotions and I’m free to feel them. They’re not wrong. They’re normal. And this is so hard. It’s no wonder that I feel angry and sad and depressed and worried and even hungry at times. (So so hungry.) We feel things. It’s what we do.

 

So stages of grief and all that aside… we had an embryo (i.e. the embryo) transferred to my uterus yesterday. At present, it’s a little ball of cells floating in space and the hope is that it will eventually implant into the uterine lining, effectively establishing a viable pregnancy. I don’t know how likely that is or is not. All I know is that on August 5th, we’ll do a blood test for HCG — a pregnancy test (not the pee on a stick kind). A negative is the real thing. Negative = negative. A positive could still be a false positive though, so if we do get a positive result, we have to do another blood test two days later on August 7th to look for rising levels of HCG, which will effectively confirm the positive result. It would be lovely to think that maybe I could look for signs and symptoms of pregnancy in the interim, but with the hormone overload my body is currently going through, I already have just about all of them and there’s no way any sign of actual pregnancy could be differentiated from the craziness happening in my body baby or no… so we wait.

Wait and accept and relinquish and let that little bit of hope in because that’s pretty much all we can do.

IVF: post-egg retrieval, pre-embryo transfer, all kinds of blah

Pregnancy or Lack Thereof, , , , , , ,

It’s only been 5 days since the last time we chatted… and yet, three of them have been some of the roughest of my life, so it’s felt considerably longer. Can I get a wah wah?

Waaaah waah.

Wednesday morning was our egg retrieval surgery. As anxious as I was about the procedure, by Tuesday night my abdomen was in so much pain that all I wanted was to be knocked out.

egg retrieval surgery

We arrived at Generations at 7:00 am and by 8:30, I was in surgery. It was quick… especially to me as I’m quite susceptible to anesthesia… and we were back on the road headed home before 10:00.

Before the surgery, Seth, the nurse, and I made our guesses about how many eggs they would retrieve. I guessed 8, Seth 9, and Jen, RN, guessed 12 — double digits are ideal. Sadly, however, I was right. By the time I woke up, the eggies had been counted and 8 was the total. I was ok with 8 on Wednesday. We were told to expect fertilization of approximately 50%. I was even ok with 4 little embryos. (This is foreshadowing.)

Wednesday wasn’t so bad. I wasn’t in a ton of pain… a little, of course, as the only way to the ovaries is through the back wall of the vagina (oy) and the extreme ovarian swelling isn’t expected to decrease for at least a couple of weeks, but I was on good drugs and I sent most of the day in and out of sleep.

after surgery

Sometime well after midnight the headache started to creep in. And it grew and grew and grew to blinding pain. As I lay in bed Thursday morning, trying to crawl my way out form under the pillows piled on my head, my phone rang — it was the embryologist from the lab at Generations calling to update me on our embryos. Of the 8 eggs retrieved, only 6 were mature enough for fertilization. Following sperm injection, only three eggs were actually fertilized.

Three.

And my head was pounding and the room was spinning and I thought for sure I was going to vomit. I stumbled through the getting-ready-for-work motions, crying all the while… I was so sick. And I was so disappointed.

Just three.

In the end, I didn’t make it to work. Instead, I spent another day taking Percocet… in and out of sleep… with a box of tissues next to me… trying to talk myself out of disappointment, out of pain, and back to reality. To calm.

I drank a lot of gatorade, ingested a lot of salt (high levels of estrogen can make your vessels leaky, the salt helps them retain fluid– another stupid thing), laid around, and by Thursday evening, the headache had mostly subsided and I had talked myself into a state of satisfaction with my three maybe babies. Three is better than two… better than one… definitely better than zero. We still have a chance. Three chances, even. And with the lessening of the pain in my head, I became more and more able to handle the emotional toll as well.

After a good night’s sleep on Thursday, I woke up early on Friday and made it into work where I intended to spend a full day being as productive as possible. Except by 11:00 am, the headache was back with a vengeance. I wasn’t honestly certain that I could drive, but I couldn’t get a hold of Seth and I needed to get home so I stumbled to my car, the bile rising in my throat, not helped by a wicked case of hiccups, and somehow made it home to my bed where I laid like a corpse with pillow over my eyes, riding the waves of pain. By noon, it was so bad that Seth forced me to call Generations, who then forced me to go straight to urgent care over concerns about a clot…  another stupid estrogen thing. I spent a few more minutes crying over how much I did not want to go sit in urgent care with this insane headache before I set off. Long story short, I passed the tests, not a clot, took a massive dose of Aleve after talking to the nurse at Generations again (which is ok until embryo transfer), and spent yet another day on the couch in and out of sleep.

Another day wallowing in complete self pity.

I’m not strong anymore. I feel so done. Like my body and my mind have had just about enough.

But not yet.

On Thursday, in the midst of the headache and everything else, we started intramuscular progesterone injections. The progesterone is in oil and gets injected into the gluteus maximus — I can’t do it myself. Fortunately, Seth is a champ, and he’s done a really good job. I took heed of all the warnings and we’ve warmed it up in our hands first, used a sharpie to keep the targets marked, and spent a few minutes sitting on a heating pad afterward. So far so good.

On Monday, we head back to Generations for the embryo transfer. Day 5 embryo transfer, as opposed to the ideal day 3 transfer, can supposedly increase your chances of success if everything else is basically against you. When we get their on Monday, the doctor will discuss with us how the embryos look and how many they recommend transferring and all that. Then I pop a valium to relax my uterus, they pop the maybe baby (or babies) in, and we spend another two weeks waiting.

 

I guess the point of all this woe-is-me is to say that, honestly, I’m not nearly as calm, cool, or collected as I would really like to be. As I wish I were. I feel like I’m barely holding on. I’m feeling super sorry for myself and disappointed in the way things have gone so far. Although outwardly, I tried to keep my expectations low, in my deepest heart of hearts I was hoping for so much more. For eggs in the double digits. A fertilization rate that exceeded the norm. And for a big batch of maybe babies that we could store safely in the freezer and use to grow our family one transfer at a time.

But that’s not life. Certainly not mine. If things worked out that way, I wouldn’t be here at all — taking these desperate measures to have a family in the first place. That’s reality.

 

Honestly, I’m doing a little better today. I woke up early and went for a walk with the pup. I mowed the lawn. I made some cookies and a delicious dinner for Seth and his dad (who slaved all day long working in the garage). I took myself for a pedicure… and splurged on the “deluxe,” complete with hot stone massage and paraffin treatment. Most importantly, I didn’t cry even once. That was especially nice. And tomorrow’s another day.