Tag Archives: spread the word to end the word

Spread the Word to End the Word

I told you about my friend Aimie last week– she’s super awesome. And now you know. The thing she invited me to last week was also awesome. So awesome that I decided it really required it’s own post.

The event was part of a campaign called Spread the Word to End the Word. The word they’re talking about? The R-word. It’s not cool to say, it’s not fun to use, and it doesn’t make for good jokes. The end.

Before the killer puppet show (don’t worry, I’ll tell you about the puppet show), a man named Jason got up and told us his story– his moment of realization about the R-word. And this is what he said (huge thanks to Aimie for getting this for me… truly, she’s awesome).

A few days ago I heard a joke that made me laugh. Actually it has made me laugh every time I have heard it (at least 50 times since grade school). The joke is “whats better that winning a gold medal at the Special Olympics? Answer: not being ret**ded” WAIT! keep reading. I am certainly not evil it has just been funny since I was a kid because of how bad it is BUT before you judge me….trust me, if that joke offended you and you enjoy sweet sweet justice…then read on. I went to the YMCA today after being quite ill with the seasons newest ailments. I somehow mustered up enough drive ( with minor remanents of bronchitis I think) to do 15 minutes of Battle ropes, a full 45 minute upper body weight training routine and 5 inclined miles on a treadmill (if you have ever seen a fire hydrant run for it’s life then you would know just what accomplishment that is for me). Feeling pretty darn good about myself I headed to the locker room. I first called my wife to boast of my accomplishments…and to give a small warning that I might pass out if I don’t sit down for awhile. I told her of my plan to take a breather and then sit in the hot tub for 5 minutes. We laughed about my lack of fitness and probability of impending embarrassment of having to be fished out the YMCA hot tub. Now off the phone and ready to relax I walked into the pool area. It was much louder than usual and there seemed to be A LOT of people in the pool for that hour. In the hot tub sat a single young man keeping to himself. I normally don’t engage the “tub sitters” when I am there, I’m just not that kind of guy. I get this odd sense of relief when the person in there is around my age and quiet. I walked down into the tub and what happened next was so unbelievable that I am taking the time to write about it here. No sooner than the water hitting my waistline the man stood up move towards me with serious sense of urgency and commitment. With his right wrist anchored on his belly he extended his hand out to me and in tone and volume that you would expect from the greatest circus ring leaders he belted ” HI MY NAME IS MATT! WHAT IS YOUR NAME!..I responded with “Hey Matt my name is Jason, nice to meet you”…in which he volleyed back “HI JASON, MY NAME IS MATT AND IT IS NICE TO MEET YOU…YES…NICE TO MEET YOU!”. The look in this young mans eyes during this remarkably animated salutation was nothing short of the most confident, endearing, genuinely inquisitive and caring look I may have ever seen. Just then a older man interrupted us and said okay Matt, back in the pool. He quickly acquiesced without any hesitation. Watching him return to the pool I then realized that the pool was full of people that required some additional attention and had unique personal challenges. Now I was alone in the hot tub watching. As I watched I literally felt my heart warm, warmer than the waters around me…so warm in fact it radiated to my face and made me smile. Now for the Amazing lesson part… I sat back for another moment by myself enjoying my appreciation for what was going on around me when it happened…It was one of those moments that I wish the whole world could experience. A young man in his late teens early twenties made his way down the stairs into the tub…now I recognize that look of supreme confidence and braced myself for the engagement I was about to have. He moved through the water quickly and with purpose. Sitting down in a hurry in the corner opposite of mine he immediately took notice of me and spoke out in a passionate tangent ” MY NAME IS PHIL, HAVE YOU HEARD OF ME?DID YOU HEAR I WENT TO STATE LAST YEAR?THERE WERE A COUPLE OF US THAT WENT TO STATE LAST YEAR?I’M SAVING THIS SPOT FOR MY FRIEND?WHATS YOUR NAME?…jason…HI JASON ..another person started to make there way into the tub… HEY THIS IS JASON..JASON THIS so and so…HE WENT TO STATE TOO..A COUPLE OF US DID …as he continued to speak the hot tube began to fill up to capacity…and Phil, one by one introduced me by name to each of them. He also told them where to all sit, where to stand and finally his friend arrived to take his place at the right hand of the GREAT STATE CHAMPION PHIL. Now the hot tub was literally filled to capacity with standing room only. I was surrounded by some of the happiest and content people I had ever had the pleasure of being around. I couldn’t help but smile as I heard them laughing and talking each other up with such sincerity and innocence. An older woman was standing outside of the tub watching this crew of AMAZINGLY CONFIDENT CHARACTERS with personalities that could fill the entire pool not to say much about the small hot tub. I had to ask… Excuse me miss…is this some type of group event are all of these amazing people from the same place and are you a volunteer? And with a smile she looked me straight in the eyes and said…yes I am a volunteer and these are the Marshfield Swimmers…The Special Olympics Swim Team. Phil stood up and announced it was TIME TO PLAY THE GAME WITH THE BALLS IN THE OTHER POOL and the tub cleared out as fast as it had filled. I was the last one to exit; meeting that woman at the top of the stairs. I had only one more question for her…where do I sign up to volunteer? She introduced me to the Team manager and quickly gathered all of the paperwork. She said last year they had 9 athletes and this year they have 16 so they can use all the help they can get! She was almost as excited as I was. She made a comment that I will never forget for as long as I live ” you know, they will look at you as a role model”..I let that responsibility settle in for a moment and responded “I think they are the ones that are the role models “…her and the manager both nodded. When I left with my paperwork in hand I sat in the car for a moment and just smiled. I could hear God laughing at me in enjoyment as if to say ” ohhh my little jug-head, you are too easy sometimes, a little inappropriate joke for the set up, a couple of my very special children for the delivery and BAM…life change….bet you wont laugh at that little stand up bit again will you?”. I know this is long post but I really felt compelled to share it here. I start next Tuesday and I cant wait…but, for those of you that know me I have to add one more thing…last year … 6 of the 9 athletes from Marshfield went to state. So as luck would have it…looks like I will be helping awesome people be awesomer! Thank you for reading and I hope it inspired you in some way. 

The kids loved it Jason’s story. Naturally. And I was left grinning from ear to ear. It’s a big deal– to be able to change your mind, your outlook, your world-view because you realize that there’s a better way. Too cool!

And after that awesome story, some puppets told the rest!

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That’s Hairy– kind of Big Bird-like and very cute 🙂

Hairy and Company and their human friends told some stories, sang some songs, and made us all laugh and cheer. Aimie and I laughed especially heartily when we realized that someone had turned an awkward hybrid of our friend Michele and me into a puppet. A puppet named Dudley.

Dudley was shy at first, hesitant to even introduce himself to all of us. Then he did, “Hi! I’m Dudley! I have problems and I wrote a song about it!”

Word, Dudley!

Hi, I’m Rachel! I have problems and I write a blog about it!

Oy, that was poignant 😉

But seriously, I was thrilled at the message these kids were getting. To be yourself, to respect others, to be ok with differences, because really, we’re all a little different in a lot of different ways. And they loved it! They sang the songs and danced and cheered for those crazy puppets. They clapped for Jason and yelled out responses to questions. It was so great!

And the biggest message? Mental capacity is just one tiny way in which we might be different from someone else. One. Of millions… billions… trillions even! So respect it, limited or not, and look for the things that make others special.

Spread the word, yo!

Profile in Awesome: Aimie Eckelberg

One of the most popular Under the Tapestry posts to date was the Profile in Awesome featuring Aimee Rathbun.  And I can see why– Aimee really is  awesome!  And she makes for an absolutely riveting read!

Aimee Rathbun is actually one of only FOUR really awesome (Aimee/Aimie/Amy)s that I know. (That, by the way, is the plural of the name A-ME in all its different spellings. You’re welcome.) And for my second profile in awesome, I’d like to tell you about my co-worker, my friend, and all around awesome.com person Aimie Eckelberg.

Aimie started working in the Office of Scientific Writing and Publication shortly after I did in 2011 and good grief am I glad she did. For two reasons: 1) I don’t think I could survive in my job without her, but more importantly, 2) SHE’S AWESOME! She has since moved on to greener pastures as part of the Clinical Medicine and Research staff, but (fortunately for me) her office didn’t move. YAY!

Aimie on the far right-- pretty in pink, adored by her office-mates :)
Aimie on the far right– pretty in pink, adored by her office-mates 🙂

So I asked my friend Aimie Eckelberg to be my second profile in awesome. I was totally anticipating an uphill battle to convince her to participate, but was pleasantly surprised when she quickly said yes. (YES!) However, I perhaps was a bit too coercive and pressure-y (so sorry, Aimie, dear!) and she ended up asking not to write about herself. Although, it wasn’t so much her concern about writing about herself that did her in. Rather, it was her concern about writing about her family and not doing them justice that truly concerned her. Which of course, made my heart swell with pride for being able to call Aimie my friend and made me want to profile her all the more. Considering that this is only the second-ish installment in this series, I think you can probably forgive the departure from the norm.

There are so many things I adore about Aimie! She’s crazy nice, super cute, undeniably stylish, bright (like really bright), 100% mom-spirational, and the type of person who just knows who she is and what she’s doing and does all of it (and more!) in such an admirable way. It’s impossible not to just love her. (Or at least I assume it is, I’d like to see someone try!) To be honest, I loved Aimie from the moment she came in to interview. So much, that I creepily pointed out her perfect and flawless skin as a good reason to hire her. We did. But I’m pretty sure her skin was only part of the reason why.

Aimie grew up with her brother and parents in Spencer, Wisconsin… a town even smaller than Marshfield (believe it or not) just to the northwest of where we are now. Aimie truly embodies what it means (to me, anyway) to be from the Midwest. She is unassuming and hard working. Soft spoken, for the most part, but loyal to the core and unwilling to let something wrong go without taking action.

I absolutely love that Aimie is a local girl through and through. Every day, she demonstrates how much she believes in this community and truly makes me look forward to having lived here longer than not– to have roots in this town like she does. Last night, Aimie invited me to a campaign for Spread the Word to End the Word at her kiddos’ school and I went intending to take a couple pictures of Aimie doing her thang and to talk to Emma and Noah about what it is that, in their opinion, make their mom so dang awesome. I got way more than I bargained for. Of course. Because she’s Aimie. And I plan to tell you all about Spread the Word to End the Word and the awesome Harry and Company puppet show I saw later this week– it’s totally worthy of it’s own post and only goes to prove more and more why the things that Aimie are involved in are good things, for her family and for this community.

In fact, motherhood and kid stuff are the things that seem, at least in my opinion, to make Aimie tick and that’s what I really want to highlight about her.  Aimie is, as I mentioned, 100% mom-spirational and her kids are 1) awesome (likely due to good parenting) and 2) special in a lot of ways.  First off, Aimie’s two little bebes are quintessentially boy and girl and oh so different from each other.  I’m so impressed with how Aimie and her husband parent two such incredibly unique children. Unique and adorable children.

Do you see how adorable these kiddos are?! (Plus, Aimie's skin, right? Cover Girl-style flawless!)
Do you see how adorable these kiddos are?! (Plus, Aimie’s skin, right? Cover Girl-style flawless!)

One of the most amazing things I see about Aimie as a parent is her crazy perseverance.  I’ve only known her for a little over two years, and even in that short time, I have seen her find herself constantly in the position to have to fight, fight, fight for what her children need.  And she does.  She never gives up.

I suppose a little back story is in order. Aimie’s oldest child, Noah, is 10 years old and was born with spina bifida, the most common permanently disabling congenital condition in the United States, which results from failure of the spinal column to close completely. I’d love to say that Noah is completely normal despite his condition, but that wouldn’t be true. Because honestly, nothing about Noah is normal. He is an unbelievably bright and articulate kid. He is fascinating to talk to. (He challenged me to a magical dual last night, by the way. He also schooled me in HP trivia. Awesome kid!)

Noah is hilarious and independent and thoughtful and kind and, not only all of that, but he’s crazy athletic too. Under the tutelage of paralympian Tony Iniguez (like real deal was in the olympics in Beijing, coached in London, for seriously), Noah recently took up wheelchair racing and plans to someday attend the University of Illinois to continue his racing career. And it’s not just racing either! Noah plays sled hockey and basketball and loves just about every active thing he can get himself into– which is legitimately pretty much everything.

And Emma is just as special! It’s incredible the way her shy smile can light up a room. She absolutely beams. Although, the sparkly letters on the back of her Universal Academy of Dance jacket certainly help the case in that respect. Emma is super into dance, and really, really good at it– ballet, jazz, tap, you name it. And she got so into cheerleading this fall that Aimie dusted off her pompoms and practiced her cheers until she ended up as the coach! So fun! Go Tigers! All the little girls adored Aimie (what’s not to adore, right?)… especially when she was “weird”– and that’s a direct quote from one of the girls 🙂

So because her kids are so amazing and because it hurt Aimie to see them struggle at certain things, Aimie opened her big old heart and wrote a book about it. A children’s book.

In 2010, Aimie Eckelberg added author to her resume when she wrote a children’s book called Walk the Walk.

Walk the Walk. Available on Amazon.com.
Walk the Walk. Available on Amazon.

Walk the Walk tells the story of Jon, a little boy with special needs who turns a bit of bullying at the start of a new school year into an opportunity to teach other kids about differences and understanding. And this book has done just that over and over and over again. Noah and Emma’s classes have read the book, Aimie has brought it in and discussed it, Noah has used it as an opportunity to show off his braces and talk about his differences and pretty much always, his peers are fascinated. Aimie has spoken about her book and been an activist for children with special needs through the Children’s Miracle Network and Spina Bifida Association. Her name is passed around by obstetricians here at Marshfield Clinic looking to help families facing new challenges find a mentor. She inspired me to adopt a family this Christmas through the Pediatric Angel Fund. And she is a well-respected and admired member of this community.

The only thing is, despite all of this awesome, Aimie has eaten a large slice of humble pie and any and all of this is dragged out of her or made public knowledge in some other way… otherwise, you’d truly never know. (For example, another coworker, Deb, said to a physician lamenting Aimie’s absence from work one day, “Aimie has a child with special needs AND wrote and published a book about it for other children!” He was floored… and impressed!) But I want you to know how awesome Aimie is and for Aimie to recognize all of the good that she’s done.

To round out this profile in awesome, I really wanted to know what Noah and Emma thought about their mom’s awesome qualities. I’ve got to tell you, though, to them– she’s just mom.

I asked Emma first. Her response: She gives us candy!

To which Noah immediately replied, “Emma! Are you kidding?! She drives you to dance! And pays for your dance!”

So I asked Noah. His response: She pretty much drives me everywhere.

Good point Noah, much better than Emma’s. (sarcasm)

Although, they thought about it on the way home and came up with a lot more reasons. So many reasons that they made me a list and had Aimie bring it to me this morning.

So much awesome!
So much awesome!

Love it! Love it so much! She is a mom through and through, and that’s what her kids see– she loves them and cares for them, she feeds them, clothes them, houses them, she is smart, funny, patient, and giving. Normal mom stuff. And what kind of a testament is that?

A huge one, if you know about the behind-the-scenes. About Aimie’s struggle to get her children the care and support they need in various local school systems. About Aimie’s necessity to fill in and coach cheerleading at the last minute because someone else was going to let the girls down. About Aimie’s ongoing fight to make sure Noah and Emma have every single opportunity they could possibly want– be it educational assistance or wheelchair sports. And the two of them will likely never be the wiser… at least not for a while. Until they are grown up and truly capable of appreciating all of the good and amazing things their mom does. She’s certainly appreciated for it all elsewhere! She is certainly awesome.

Like I said in the beginning, Aimie has introduced me to a lot… and she’s awesome. I can’t wait to tell you about the Spread the Word to End the Word campaign later this week, it’s too cool!